Creating “a Safe Place to Go”: Yarning With Health Workers About Stroke Recovery Care for Aboriginal Stroke Survivors—A Qualitative Study

Author:

Janssen Heidi123ORCID,Owen Simone1,Thompson Amy4,Newberry-Dupe Jackson5,Ciccone Natalie6,Smallwood Reakeeta7,Neville Sampson Uncle8,Brandy Vickie9,Miller Joe10,Trindall Aunty Audrey810,Peake Rachel11,Usher Kim12,Levi Christopher259,

Affiliation:

1. Hunter Stroke Service, Hunter New England Local Health District, New Lambton Heights, NSW, Australia

2. Heart and Stroke Program, Hunter Medical Research Institute, New Lambton Heights, NSW, Australia

3. School of Health Sciences, The University of Newcastle, Newcastle, NSW, Australia

4. Consumer With Lived Experience, Kempsey Community Health Centre, Kempsey, NSW, Australia

5. School of Medicine and Public Health, The University of Newcastle, Newcastle, NSW, Australia

6. School of Medical and Health Sciences, Edith Cowan University, Joondalup, WA, Australia

7. Newcastle’s Department of Rural Health, University of Newcastle, Tamworth, NSW, Australia

8. Community Elder, Tamworth Community Health Centre, Tamworth, NSW, Australia

9. Hunter New England Health Local Health District, New Lambton Heights, NSW, Australia

10. Consumer With Lived Experience, Tamworth Community Health Centre, Tamworth, NSW, Australia

11. Hunter New England Local Health District, Tamworth, NSW, Australia

12. School of Health, University of New England, Armidale, NSW, Australia

Abstract

Stroke affects Aboriginal people at disproportionate rates compared to other populations in Australia. Aboriginal peoples are less likely to receive a timely stroke diagnosis, or timely culturally responsive treatment, as there are very few stroke resources and recovery plans that have been developed by Aboriginal peoples for Aboriginal peoples. Understanding how to develop and implement culturally responsive stroke care requires research approaches that are informed by and with Aboriginal people. A qualitative Indigenous research methodology including “yarning” was undertaken to understand the experiences of both Aboriginal and non-Aboriginal health workers from nine health services providing stroke rehabilitation and recovery support to Aboriginal people living within the participating communities. Data were analyzed using an inductive approach driven by an Indigenous research approach. Yarns revealed three themes: (i) the role of culturally safe health environments to support stroke survivors, their family, and health workers; and how (ii) complicated, under-resourced systems impede the capacity to support stroke survivors; and (iii) collaborative and adaptive practices prevent people “falling through the cracks.” This study highlights the need to scrutinize the cultural safety of health care, current health systems, workforce, and culture and how these influence the capacity of health workers to provide care that is responsive to the individual needs of Aboriginal stroke survivors and their families. These learnings will inform the co-design of a culturally responsive stroke recovery care strategy to improve the recovery experience and health and well-being of Aboriginal people and their families living with stroke.

Funder

National Stroke Foundation

Medical Research Future Fund Cardiovascular Health Mission - Cardiovascular Health

Publisher

SAGE Publications

Reference39 articles.

1. AIHW. (2023a). ‘Rehabilitation’, heart, stroke and vascular disease: Australian facts. https://www.aihw.gov.au/reports/heart-stroke-vascular-diseases/hsvd-facts/contents/treatment-and-management/rehabilitation

2. AIHW. (2023b). ‘Stroke’, heart, stroke and vascular disease: Australian facts. https://www.aihw.gov.au/reports/heart-stroke-vascular-diseases/hsvd-facts/contents/all-heart-stroke-and-vascular-disease/stroke

3. “You felt like a prisoner in your own self, trapped”: the experiences of Aboriginal people with acquired communication disorders

4. Communication disorders after stroke in Aboriginal Australians

5. The development of aboriginal brain injury coordinator positions: a culturally secure rehabilitation service initiative as part of a clinical trial

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