Studying Children’s Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose

Author:

Bryan Gemma1ORCID,Bluebond-Langner Myra1,Kelly Daniel2,Kumpunen Stephanie3,Oulton Kate4,Gibson Faith45ORCID

Affiliation:

1. University College London, London, United Kingdom

2. Cardiff University, Cardiff, Wales

3. Nuffield Trust, London, United Kingdom

4. Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom

5. University of Surrey, Guildford, United Kingdom

Abstract

Increased emphasis on the child’s voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children’s experiences with health care professionals, including the “Draw and Write” technique, a sticker activity, a paper–person exercise, informal interviews, and participant observation. Each of these methods was examined with regard to ease of use, data generation, and utility of data for accessing children’s perspectives and development of initial clinical guidance.

Funder

Olivia Hodson Cancer Fund

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health

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