Aligned and Divergent Perceptions of Support Persons’ Role in Triadic Gynecologic Cancer Communication

Author:

Lee Lauren E.1ORCID,Greene Kathryn1ORCID,Venetis Maria K.1ORCID,Bontempo Allyson C.1ORCID,Catona Danielle2,Buckley de Meritens Alexandre34ORCID,Devine Katie A.3ORCID

Affiliation:

1. Department of Communication, Rutgers University, New Brunswick, NJ, USA

2. Department of Global and Community Health, George Mason University, Fairfax, VA, USA

3. Rutgers Cancer Institute of New Jersey, New Brunswick, NJ, USA

4. Robert Wood Johnson Medical School, New Brunswick, NJ, USA

Abstract

Health care providers routinely advise cancer patients to involve support persons in oncology care to fulfill critical support roles. This qualitative descriptive study explored alignment of triadic perceptions of support person involvement in oncology treatment visits and cancer-related care from the perspectives of patients with gynecologic cancer ( n = 18), regular visit-attending support people ( n = 16), and health care providers ( n = 10), including oncologists, nurses, and medical assistants. Semi-structured interviews ( N = 44) captured perceptions of facilitation and interference of support persons' roles within and outside appointments with oncology providers. Thematic analyses revealed alignment and divergence regarding support persons' instrumental, informational, and emotional support behaviors. Perspectives aligned regarding what support functions companions provide. However, patients and support persons emphasized the significance of instrumental followed by informational and emotional support, whereas oncology providers highlighted informational, followed by emotional and instrumental support. Discussion provides insight into each role’s perspective in the triad.

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health

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