Telemediated Training in the Home as a Part of the Everyday Life and Practice With Very Severe Chronic Obstructive Pulmonary Disease

Author:

Rayce Kathrine123ORCID,Rosenbek Minet Lisbeth3456,Kidholm Kristian123,Vestbo Jørgen78,Pedersen Claus Duedal1,Huniche Lotte9

Affiliation:

1. Department of Research and Health Technology Assessment, Odense University Hospital, Odense, Denmark

2. Centre for Innovative Medical Technology (CIMT), Odense University Hospital, Odense, Denmark

3. Department of Clinical Research, Odense University Hospital, Odense, Denmark

4. University of Southern Denmark, Odense, Denmark

5. Unit of Rehabilitation, Odense University Hospital, Odense, Denmark

6. Department of Health Sciences, UCL University College, Odense, Denmark

7. Division of Infection, Immunity and Respiratory Medicine, The University of Manchester, Manchester, UK

8. North West Lung Centre, Manchester University NHS Foundation Trust, Manchester, UK

9. Department of Psychology, Faculty of Health Sciences, University of Southern Denmark, Odense, Denmark

Abstract

Patients with very severe chronic obstructive pulmonary disease (COPD) conduct their everyday lives under shortness of breath. The aim of this study was to explore telemediated exercise training to patients at home, with the conduct of everyday life as a theoretical framework. Based on ethnographic fieldwork involving a hospital, two municipalities, and homes of 11 patients from 2013 to 2017, this article shows how telemediated training became part of patients’ and partners’ everyday lives and the prioritization of time and resources for basic activities. Most of the patients found telemediated training meaningful, that it can work as an agent of hope in holding on to essential everyday life activities, but also that it may be experienced as burdensome and disciplining. The physiotherapists’ understanding of the patients’ circumstances and needs for rehabilitation changed. The article argues that telemediated training should be offered as part of a palliative approach for those severely affected by COPD.

Funder

Tunstall

CoLab Odense

Syddansk Universitet

Region of Southern Denmark

Odense Universitetshospital

Danmarks Lungeforening

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health

Reference16 articles.

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