“It All Depends”: Patient and Decision Partner Experiences in Cancer Clinical Trial Decision-Making

Author:

Gray Tamryn F.12ORCID,Allgood Sarah J.3,Nolan Marie T.3,Gallo Joseph J.34,Han Hae-Ra34,Clayman Marla L.5,Budhathoki Chakra3,Lansey Dina G.6,Wenzel Jennifer36

Affiliation:

1. Dana-Farber Cancer Institute, Boston, MA, USA

2. Harvard Medical School, Boston, MA, USA

3. Johns Hopkins School of Nursing, Baltimore, MD, USA

4. Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA

5. Center for Healthcare Organization and Implementation Research (CHOIR), VA Health Services Research and Development Service, Bedford, MA, USA

6. Department of Oncology, Johns Hopkins School of Medicine, Baltimore, MD, USA

Abstract

While the supporting role of families and friends has been widely recognized in cancer care, little data exist on how they influence patients’ decisions regarding clinical trial participation, accounting for patients’ decisional preferences. The goal of our study was to examine the process of clinical trial decision-making from the perspective of adults with cancer and their decision partners. Semi-structured interviews were conducted with 12 patients and 12 decision partners—family and friends engaged in the medical decision-making. Themes included: (1) having the ability and confidence to make decisions; (2) gaining insight about clinical trials; (3) trusting someone in the process; and (4) realizing readiness and context. Our findings will enhance understanding of how patients make clinical trial decisions based on decisional preferences from the perspectives of patients and decision partners. The findings may also help to increase clinician awareness and inclusion of decision partners in conversations regarding clinical trials.

Funder

Oncology Nursing Foundation

Robert Wood Johnson Foundation

American Cancer Society

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health

Cited by 2 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

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