Communication Between People With Schizophrenia and Their Medical Professionals: A Participatory Research Project

Author:

Schneider Barbara1,Scissons Hannah2,Arney Laurie3,Benson George3,Derry Jeff3,Lucas Ken3,Misurelli Michele3,Nickerson Dana3,Sunderland Mark3

Affiliation:

1. Faculty of Communication and Culture, University of Calgary, Alberta, Canada

2. Faculty of Communication and Culture at the University of Calgary, Calgary, Alberta, Canada

3. Adult Unsung Heroes Support Group for People with Schizophrenia Run by the Schizophrenia Society of Alberta, Calgary Chapter

Abstract

The authors describe a participatory research project undertaken by a group of people with schizophrenia under the guidance of a university researcher. Participatory research involves members of the research group in meaningful participation in all stages of the research process. In this study, group members chose the topic—experiences with medical professionals—and method of data collection—in-depth interviews that they conducted with each other. They developed and performed a readers’ theater presentation of the results and their recommendations for how they would like to be treated by medical professionals. The results indicate that good communication with medical professionals is essential to people with schizophrenia; it helps them accept the fact that they are ill and learn to live with the illness. The research offered a transformative experience to group members and is contributing to change in the practice of health care for people with severe mental illnesses.

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health

Reference16 articles.

1. Balcazar, F., Keys, C. B., Kaplan, D. L. & Suarez-Balcazar, Y. (1999). Participatory research and people with disabilities: Principles and challenges . Canadian Journal of Rehabilitation, 12, 105-112 .

2. Burns, T., Baldwin, D., Emsley, R., Kerwin, R., Steinberg, J. & Van Os, J. (1999). Treatment challenges in schizophrenia . Primary Care Psychiatry, 5(3), 117-123 .

3. Editorial

4. Chappell, A. L. (2000). Emergence of participatory methodology in learning difficulty research: Under-standing the context . British Journal of Learning Disabilities, 28, 38-43 .

5. Clafferty, R. A., McCabe, E. & Brown, K. W. (2001). Conspiracy of silence? Telling patients with schizo-phrenia their diagnosis . Psychiatric Bulletin, 25(9), 336-339 .

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