Experiencing the SARS-CoV-2 Pandemic Whilst Living With Cancer

Author:

Page Alexander1ORCID,Broom Alex1ORCID,Kenny Katherine1,Lwin Zarnie2,Wakefield Claire E34,Itchins Malinda5,Khasraw Mustafa6

Affiliation:

1. Sydney Centre for Healthy Societies, School of Social and Political Sciences, The University of Sydney, Sydney, NSW, Australia

2. Metro North Hospital and Health Service, Royal Brisbane and Women’s Hospital, Brisbane, QLD, Australia

3. Kids Cancer Centre, Sydney Children’s Hospital, Sydney, NSW, Australia

4. Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children’s Hospital, Sydney, NSW, Australia

5. Northern Cancer Institute, North Shore Private Hospital, Sydney, NSW, Australia

6. Duke Cancer Institute, Duke University, Durham, NC, USA

Abstract

The SARS-CoV-2 pandemic has resulted in considerable consequences for many cancer patients, exacerbating pre-existing systemic health system limitations as well as creating new challenges. From socially distanced clinics and the widespread introduction of telehealth, to the halting of clinical trials and the reassessment of what constitutes “essential” treatment, care in oncology has abruptly changed. There is currently limited analysis of cancer patients’ experiences of the pandemic and its impacts on illness, wellness, and everyday life. Through semi-structured interviews with 54 people living with cancer during the 2020 phase of the SARS-CoV-2 pandemic in Australia, we explore how patients experience illness and care in reflecting upon a range of pandemic challenges, including delay, distance, and vulnerability. We find that in some cases, these pandemic conditions redefined the meaning of essential cancer care, reconfigured expectations around clinical trials, constructed new affective distances, and amplified dread and fear for people living with cancer.

Funder

Australian Research Council

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health

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