A novel technology for harmonizing and analyzing cancer data. Observations from integrating health connect in Newfoundland and Labrador, Canada

Author:

Dowden Jeffrey J1ORCID,Pretty Ryan W2,Shea Jennifer M3,Dermody Matthew4,Doyle Gregory1,Antle Scott1,Bond Dan5

Affiliation:

1. Cancer Care Program, Newfoundland and Labrador Health Services, St. John’s, NL, Canada

2. Faculty of Medicine, Memorial University, St. John’s, NL, Canada

3. Department of Community Health and Humanities, Memorial University, St. John’s, NL, Canada

4. Consulting Services, Deloitte Canada, St. John’s, NL, Canada

5. Research and Innovation, Newfoundland and Labrador Health Services, St. John’s, NL, Canada

Abstract

Objective: This article aims to describe the implementation of a new health information technology system called Health Connect that is harmonizing cancer data in the Canadian province of Newfoundland and Labrador; explain high-level technical details of this technology; provide concrete examples of how this technology is helping to improve cancer care in the province, and to discuss its future expansion and implications. Methods: We give a technical description of the Health Connect architecture, how it integrated numerous data sources into a single, scalable health information system for cancer data and highlight its artificial intelligence and analytics capacity. Results: We illustrated two practical achievements of Health Connect. First, an analytical dashboard that was used to pinpoint variations in colon cancer screening uptake in small defined geographic regions of the province; and second, a natural language processing algorithm that provided AI-assisted decision support in interpreting appropriate follow-up action based on assessments of breast mammography reports. Conclusion: Health Connect is a cutting-edge, health systems solution for harmonizing cancer screening data for practical decision-making. The long term goal is to integrate all cancer care data holdings into Health Connect to build a comprehensive health information system for cancer care in the province.

Funder

Canadian Cancer Society Data Transformation

Publisher

SAGE Publications

Reference47 articles.

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3. Statistics Canada. Focus on geography series, 2016 census. Statistics Canada catalogue no. 98-404-X2016001. Ottawa, ON, Canada: Statistics Canada, Canada, 2017. https://www12.statcan.gc.ca/census-recensement/2016/as-sa/fogs-spg/Facts-pr-eng.cfm?Lang=eng&GK=PR&GC=10&TOPIC=1 (accessed 3 November, 2022).

4. Government of Newfoundland and Labrador. The way forward: chronic disease action plan. St. John's NL, Canada: Govenment of Newfoundland and Labrador. https://www.gov.nl.ca/hcs/files/chronicdisease-pdf-chronic-illness.pdf, (accessed 15 August 2022).

5. Canadian Cancer Statistics Advisory Committee in collaboration with the Canadian Cancer Society. Canadian Cancer Statistics, 2021, https://cdn.cancer.ca/-/media/files/research/cancer-statistics/2021-statistics/2021-pdf-en-final.pdf (accessed 14 August, 2022).

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