Measuring Social Health Following Pediatric Critical Illness: A Scoping Review and Conceptual Framework-Reference-Cited by-同舟云学术

Measuring Social Health Following Pediatric Critical Illness: A Scoping Review and Conceptual Framework

Published:2022-05-22 Issue:1 Volume:38 Page:32-41
ISSN:0885-0666
Container-title:Journal of Intensive Care Medicine
language:en
Short-container-title:J Intensive Care Med

Author:

Daughtrey Hannah¹,Slain Katherine N.²,Derrington Sabrina³,Evans Idris V. R.⁴⁵^ORCID,Goodman Denise M.⁶,Christie LeeAnn M.⁷,Li Simon⁸,Lin John C.⁹,Long Debbie A.¹⁰,Madden Maureen A.¹¹,VandenBranden Sara¹²,Smith McKenna¹³,Pinto Neethi P.¹⁴,Maddux Aline B.¹⁵,Fink Ericka L.¹⁶,Watson R. Scott¹⁷¹⁸,Dervan Leslie A.¹⁷¹⁹^ORCID,

Affiliation:

1. Children’s National Hospital Heart Institute, Division of Pediatric Cardiology, Children’s National Hospital, Washington, DC, USA

2. Division of Pediatric Critical Care Medicine, Department of Pediatrics, Case Western Reserve University School of Medicine & UH Rainbow Babies & Children’s Hospital, Cleveland, OH, USA

3. Division of Anesthesiology & Critical Care and the Center for Pediatric Bioethics, Children’s Hospital Los Angeles, Los Angeles, CA, USA

4. Department of Critical Care Medicine, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA

5. The Clinical Research, Investigation, and Systems Modeling of Acute Illness (CRISMA) Center, Pittsburgh, Pennsylvania, USA

6. Pediatric Critical Care Medicine, Department of Pediatrics, Northwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA

7. Dell Children’s Medical Center of Central Texas, Austin, Texas, USA

8. Pediatric Critical Care Medicine, Department of Pediatrics, Rutgers Robert Wood Johnson Medical School, New Brunswick, NJ, USA

9. Pediatric Critical Care Medicine, Department of Pediatrics, Washington University School of Medicine, St. Louis, MO, USA

10. School of Nursing, Centre for Healthcare Transformation, Queensland University of Technology; Paediatric Intensive Care Unit, Queensland Children’s Hospital, Brisbane, Australia

11. Rutgers Robert Wood Johnson Medical School, New Brunswick, New Jersey & Bristol Myers Squibb Children's Hospital, New Brunswick, New Jersey

12. Pediatric Critical Care Medicine, Helen DeVos Children’s Hospital, Grand Rapids, MI, USA

13. Department of Pediatrics, Critical Care Medicine, University of Utah School of Medicine, Salt Lake City, UT, USA

14. Department of Anesthesiology and Critical Care Medicine, Children’s Hospital of Philadelphia, Philadelphia, PA

15. Pediatric Critical Care Medicine, Department of Pediatrics, University of Colorado and Children’s Hospital Colorado, Aurora, CO, USA

16. Department of Critical Care Medicine, UPMC Children’s Hospital of Pittsburgh, University of Pittsburgh, Pittsburgh, PA, USA

17. Pediatric Critical Care Medicine, Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA

18. Center for Child Health, Behavior, and Development, Seattle Children's Research Institute, Seattle, WA, USA

19. Center for Clinical and Translational Research, Seattle Children’s Research Institute, Seattle, WA, USA

Abstract

Objective Social health is an important component of recovery following critical illness as modeled in the pediatric Post-Intensive Care Syndrome framework. We conducted a scoping review of studies measuring social outcomes (measurable components of social health) following pediatric critical illness and propose a conceptual framework of the social outcomes measured in these studies. Data sources PubMed, EMBASE, PsycINFO, CINAHL, and the Cochrane Registry Study selection We identified studies evaluating social outcomes in pediatric intensive care unit (PICU) survivors or their families from 1970–2017 as part of a broader scoping review of outcomes after pediatric critical illness. Data extraction We identified articles by dual review and dual-extracted study characteristics, instruments, and instrument validation and administration information. For instruments used in studies evaluating a social outcome, we collected instrument content and described it using qualitative methods adapted to a scoping review. Data synthesis Of 407 articles identified in the scoping review, 223 (55%) evaluated a social outcome. The majority were conducted in North America and the United Kingdom, with wide variation in methodology and population. Among these studies, 38 unique instruments were used to evaluate a social outcome. Specific social outcomes measured included individual (independence, attachment, empathy, social behaviors, social cognition, and social interest), environmental (community perceptions and environment), and network (activities and relationships) characteristics, together with school and family outcomes. While many instruments assessed more than one social outcome, no instrument evaluated all areas of social outcome. Conclusions The full range of social outcomes reported following pediatric critical illness were not captured by any single instrument. The lack of a comprehensive instrument focused on social outcomes may contribute to under-appreciation of the importance of social outcomes and their under-representation in PICU outcomes research. A more comprehensive evaluation of social outcomes will improve understanding of overall recovery following pediatric critical illness.

Funder

Institute of Translational Health Sciences

Eunice Kennedy Shriver National Institute of Child Health and Human Development

Francis Family Foundation

Publisher

SAGE Publications

Subject

Critical Care and Intensive Care Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/08850666221102815

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