Participation in Occupations: Some Experiences of People with Parkinson's Disease

Abstract

Evidence suggests that people with Parkinson's disease can experience difficulties participating in occupations. This article describes a qualitative study that explored how seven people with Parkinson's disease perceived their participation in occupations. The analysis of the semi-structured interviews led to the identification of three themes: changes, addressing changes and perspectives on living with Parkinson's disease. Many findings supported the existing literature; for example, difficulties with self-care occupations and the desire to maintain normality. The new findings included the participants describing positive changes in their lives that were attributable to having Parkinson's disease and using occupations purposefully to enhance wellbeing. The results support the use of a client-centred approach to consider the implications of participation in occupations for people with Parkinson's disease, because this may encourage clients to use their own expert knowledge to enhance existing coping strategies. The recommendations for further research include an investigation as to whether the themes identified apply to a larger population and including people with Parkinson's disease in designing future research questions about the impact of occupational participation on wellbeing.