Life Experiences of Patients With Multiple Sclerosis About Their Spasticity: A Phenomenological Study

Author:

Özkan İlknur1ORCID,Polat Dunya Cansu2ORCID,Demir Serkan3

Affiliation:

1. Akdeniz University, Antalya, Turkey

2. Istanbul University, İstanbul, Turkey

3. Sancaktepe Şehit Prof. Dr. İlhan Varank Training and Research Hospital, Istanbul, Turkey

Abstract

Spasticity is one of the main symptoms that is most common in patients with Multiple Sclerosis and causes increased disability. The aim of this study is to understand the experiences of patients with Multiple Sclerosis about their spasticity from their perspective. This study was conducted as a qualitative study with a Hermeneutic phenomenological framework. The data were evaluated by using VanManen’s thematic analysis method. As a result of the data analysis, four main themes were elicited, namely, “the meaning of spasticity for the patient,” “the difficulties of living with spasticity,” ‘coping with spasticity,” and “the new me created by spasticity.” It was understood that spasticity is a symptom that brings about difficulties in psychological, social, and working life as well as physical difficulties. Nurses should be aware of the psychological symptoms as well as the physical symptoms that patients experience due to spasticity and should create a patient-specific management program.

Publisher

SAGE Publications

Subject

General Nursing

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