Psychosocial Adjustment of Patients on Home Hemodialysis and Their Dialysis Partners

Abstract

When hemodialysis (HD) became practical as an intervention for patients with end-stage renal disease, most were on home HD. The numbers of patients requiring dialysis are increasing as the resources for them are decreasing. Simultaneously, there is a move toward home health care. This study investigated the psychosocial reactions of patients on home HD and their dialysis partners, how decisions were made to choose home HD, and the patients’ perception of HD stressors. The participants were 14 patients on home HD and their dialysis partners; 7 were husband-wife pairs, 2 mother-daughter pairs, 1 sister pair, and 1 friend pair. Instruments included the Clinical Anxiety Scale, the Generalized Contentment Scale, the Psychosocial Adjustment to Illness Scale Self-Report, the Spielberger State-Trait Anxiety Scale, and the Hemodialysis Stressor Scale. Interview data and the psychosocial adjustment levels of patients and partners support the effectiveness of HHD. Further research with a larger sample is needed.