Symptom Experience of Pulmonary Arterial Hypertension Patients

Author:

McDonough Annette1,Matura Lea Ann2,Carroll Diane L.3

Affiliation:

1. University of Massachusetts, Lowell,

2. Northeastern University, Boston, MA

3. Massachusetts General Hospital, Boston

Abstract

Purpose: To describe symptoms experienced by pulmonary arterial hypertension (PAH) patients and the impact these symptoms have had on their lives. Method: Qualitative descriptive methodology was chosen incorporating semistructured interviews to investigate the symptom experience of ten patients with PAH. Results: All patients were diagnosed with WHO Group 1 PAH and 70% were WHO functional Class III. Two overarching themes emerged: holding back and redefining life. Holding back was represented by three sub-themes: fear, anticipation of worsening symptoms, and treatment effects. Redefining life was characterized by uncertainty, activity restrictions, and making the best of it. Conclusion: This study revealed specific concerns related to the symptom experience of PAH patients and how they redefined their lives to accommodate these symptoms. These findings provide a basis for larger, quantitative studies to examine the extent of symptom impact as well as a framework for development of self management interventions to improve the symptom experience and QOL.

Publisher

SAGE Publications

Subject

General Nursing

Reference28 articles.

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