Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait

Author:

Gallo Agatha M.12,Wilkie Diana J.32,Wang Edward4,Labotka Richard J.5,Molokie Robert E.672,Stahl Christiane8,Hershberger Patricia E.1,Zhao Zhongsheng3,Suarez Marie L.3,Johnson Bonnye2,Pullum Cherese3,Angulo Rigoberto3,Thompson Alexis9

Affiliation:

1. University of Illinois at Chicago, College of Nursing, Department of Women, Children and Family Health Science, Chicago, IL, USA

2. Basic and Translational Research Program, Comprehensive Sickle Cell Center, University of Illinois at Chicago, Chicago, IL, USA

3. University of Illinois at Chicago, College of Nursing, Department of Biobehavioral Health Science, Chicago, IL, USA

4. University of Illinois at Chicago, College of Applied Health Sciences,Department of Biomedical and Health Information Sciences, Chicago, IL, USA

5. University of Illinois at Chicago Department of Pediatrics, Chicago, IL, USA

6. University of Illinois at Chicago, College of Medicine, Department of Medicine, Division of Hematology/Oncology, Chicago, IL, USA

7. Jesse Brown Veteran’s Administration Medical Center, Chicago, IL, USA

8. University of Illinois at Chicago, College of Medicine, Department of Pediatrics, General Pediatrics and Adolescent Medicine, Chicago, IL, USA

9. Northwestern University Feinberg School of Medicine, Division of Pediatric Hematology, Oncology, Stem Cell Transplantation; Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA

Abstract

The study purpose was to evaluate a computer-based questionnaire (SCKnowIQ) and CHOICES educational intervention using cognitive interviewing with childbearing-aged people with sickle cell disease (SCD) or trait (SCT). Ten control group participants completed the SCKnowIQ twice. Ten intervention group participants completed the SCKnowIQ before and after the CHOICES intervention. Most participants found the questionnaire items appropriate and responded to items as the investigators intended. Participants’ responses indicated that the information on SCD and SCT and reproductive options was understandable, balanced, important, and new to some. Internal consistency and test–retest reliability were adequate (.47 to .87) for 4 of the 6 scales, with significant within-group changes in knowledge scores for the intervention group but not for the control group. Findings show evidence for potential efficacy of the intervention, but proof of efficacy requires a larger randomized study.

Publisher

SAGE Publications

Subject

General Nursing

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3