Patient-reported outcomes in integrated health and social care: A scoping review-Reference-Cited by-同舟云学术

Patient-reported outcomes in integrated health and social care: A scoping review

Published:2024-03 Issue:3 Volume:15 Page:
ISSN:2054-2704
Container-title:JRSM Open
language:en
Short-container-title:JRSM Open

Author:

Hughes Sarah E¹²³⁴⁵^ORCID,Aiyegbusi Olalekan L¹²⁴⁵^ORCID,McMullan Christel¹³⁴⁵⁶,Turner Grace M¹,Anderson Nicola¹²⁵,Cruz Rivera Samantha¹³⁷,Collis Philip⁸,Glasby Jon⁹¹⁰,Lasserson Daniel²¹¹¹²,Calvert Melanie¹²³⁴⁵^ORCID

Affiliation:

1. Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK

2. National Institute for Health and Care Research (NIHR) Applied Research Collaboration West Midlands, Birmingham, UK

3. Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK

4. National Institute for Health and Care Research (NIHR) Blood and Transplant Research Unit in Precision Cellular Therapeutics, University of Birmingham, Birmingham, UK

5. National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK

6. National Institute for Health and Care Research (NIHR) Surgical Reconstruction and Microbiology Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK

7. DEMAND Hub, University of Birmingham, Birmingham, UK

8. Patient partner, Birmingham, UK

9. School of Social Policy, University of Birmingham, Birmingham, UK

10. IMPACT (Improving Adult Social Care Together), University of Birmingham, Birmingham, UK

11. Warwick Medical School, University of Warwick, Coventry, UK

12. Department of Geriatric Medicine, Oxford University Hospitals NHS Foundation Trust, Oxford, UK

Abstract

Patient-reported outcomes (PROs) have potential to support integrated health and social care research and practice; however, evidence of their utilisation has not been synthesised. To identify PRO measures utilised in integrated care and adult social care research and practice and to chart the evidence of implementation factors influencing their uptake. Scoping review of peer-reviewed literature. Six databases (01 January 2010 to 19 May 2023). Articles reporting PRO use with adults (18+ years) in integrated care or social care settings. We screened articles against pre-specified eligibility criteria; 36 studies (23%) were extracted in duplicate for verification. We summarised the data using thematic analysis and descriptive statistics. We identified 159 articles reporting on 216 PRO measures deployed in a social care or integrated care setting. Most articles used PRO measures as research tools. Eight (5.0%) articles used PRO measures as an intervention. Articles focused on community-dwelling participants (35.8%) or long-term care home residents (23.9%), with three articles (1.9%) focussing on integrated care settings. Stakeholders viewed PROs as feasible and acceptable, with benefits for care planning, health and wellbeing monitoring as well as quality assurance. Patient-reported outcome measure selection, administration and PRO data management were perceived implementation barriers. This scoping review showed increasing utilisation of PROs in adult social care and integrated care. Further research is needed to optimise PROs for care planning, design effective training resources and develop policies and service delivery models that prioritise secure, ethical management of PRO data.

Funder

National Institute for Health Research Applied Research Collaboration West

Publisher

SAGE Publications

Link

https://journals.sagepub.com/doi/pdf/10.1177/20542704241232866

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