The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease-Reference-Cited by-同舟云学术

The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease

Published:2020-07 Issue:2 Volume:7 Page:205510292097149
ISSN:2055-1029
Container-title:Health Psychology Open
language:en
Short-container-title:Health Psychology Open

Author:

Savarese Livia¹^ORCID,Freda Maria Francesca¹,De Luca Picione Raffaele²,Dolce Pasquale³,De Falco Raffaella⁴,Alessio Maria⁵,Cancian Mauro⁶,Franzese Adriana⁵,Guarino Maria Domenica⁷,Perricone Roberto⁷,Petraroli Angelica⁸,Senter Riccardo¹,Traverso Claudia⁵,Zanichelli Andrea⁹,Zito Eugenio¹⁰,Bova Maria⁵

Affiliation:

1. Department of Humanities, University of Naples Federico II, Italy

2. University Giustino Fortunato, Italy

3. Department of Public Health, University of Naples Federico II, Italy

4. Department of Neuroscience and Reproductive and Odontostomatological Sciences, University of Naples Federico II, Italy

5. Department of Translational and Medical Science, Pediatric Unit, University Federico II, Naples, Italy

6. University of Padua, Italy

7. University of Rome Tor Vergata, Italy

8. Department of Translational Medical Sciences and Center for Basic and Clinical Immunology Research (CISI), WAO Center of Excellence., University Federico II, Naples, Italy

9. Department of Biomedical and Clinical Science Luigi Sacco, University of Milan, Milan, Italy

10. Department of Social Sciences, University of Naples Federico II

Abstract

The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.

Publisher

SAGE Publications

Subject

Psychiatry and Mental health,Clinical Psychology

Link

http://journals.sagepub.com/doi/pdf/10.1177/2055102920971496

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