Closing the Home Care Case: Home Health Aides’ Perspectives on Family Caregiving

Author:

Hokenstad Alene1,Hart Andrea Y.2,Gould David A.3,Halper Deborah4,Levine Carol5

Affiliation:

1. Division of Policy Analysis at the United Hospital Fund

2. United Hospital Fund’s Division of Education and Program Initiatives

3. United Hospital Fund

4. Division of Education and Program Initiatives at the United Hospital Fund

5. Families and Health Care Project at the United Hospital Fund

Abstract

A series of focus groups with home health aides experienced in caring for patients with stroke or brain injury provided insight into how they experience their work and their relationship to family caregivers. Two issues merit more attention. First, aides reported that they do not always have all of the information, including diagnosis or previous history, which they need to provide appropriate care. Second, aides said they often receive little advance notice about when the case would close. Abrupt transitions are hard for aides, families, and patients who have often built up a good relationship. Agencies should establish better lines of communication for relevant information, correct misunderstandings about privacy rules, provide additional guidance about how to respond to caregivers’ questions, and provide adequate time for closure.

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health,Community and Home Care,Leadership and Management

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