Challenges of Integrated Home-Based Palliative Care Services for Cancer Patients during the COVID-19 Pandemic: A Qualitative Content Analysis

Author:

Alizadeh Zahra1,Rohani Camelia23ORCID,Rassouli Maryam4,Ilkhani Mahnaz5,Hazrati Maryam6

Affiliation:

1. Shahid Beheshti University of Medical Sciences, Tehran, Iran

2. Department of Health Care Sciences, Palliative Care Center, Marie Cederschiöld Högskola, Stockholm, Sweden

3. Deparment of Community Health Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran

4. Cancer Research Center, Shahid Beheshti University of Medical Sciences, Tehran, Iran

5. Deparment of Medical-Surgical Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran

6. Community Based Psychiatric Care Research Center, Shiraz University of Medical Sciences, Shiraz, Iran

Abstract

Given the situation of cancer patients as vulnerable patients and the threat of COVID-19 in the society, integration of home-based palliative care services into the healthcare system is essential. The aim of this qualitative study was to explore the current barriers of integration of palliative care services from hospital to home for cancer patients during the COVID-19 Pandemic and to provide suggestions to resolve them. Semi-structured interviews were conducted with 25 stakeholders in the healthcare system, including health policy makers, healthcare providers, clinical home healthcare experts, home healthcare researchers, university faculty members, clergy, family caregivers, and cancer patients. Data were analyzed using directed content analysis method based on the World Health Organization Public Health Strategy for Palliative Care. Challenges were extracted in 4 main categories, containing education barriers (3 subcategories), implementation barriers (9 subcategories), policy barriers (5 subcategories), and drug availability barriers (2 subcategories). Based on the results, removing the barriers and establishing a strong infrastructure for home-based palliative care services is recommended in the healthcare system by concentrating on 4 essential factors, that is, utilizing a coordinating nurse during the process of patient’s hospital discharge, establishment of connecting outpatient palliative care clinics to home healthcare centers, access to palliative care tele-medicine and development of a comprehensive and flexible home-based palliative cancer care model in our context.

Publisher

SAGE Publications

Subject

Public Health, Environmental and Occupational Health,Community and Home Care,Leadership and Management

Reference44 articles.

1. World Health Organization (WHO). Guide to Cancer Early Diagnosis. 2017. Accessed February 23, 2020. https://apps.who.int/iris/handle/10665/254500.

2. World Health Organization (WHO). World Health Organization Definition of Palliative Care. 2020. Accessed August 5, 2020. https://www.who.int/news-room/fact-sheets/detail/palliative-care.

3. Integrated care in cancer: What is it, how is it used and where are the gaps? A textual narrative literature synthesis

4. Integrated health Services for Children: a qualitative study of family perspectives

5. null

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