Strangers, Patients, Monsters, Jailers, or Children: How South African Caregivers View Their Partners with Manganese Poisoning

Abstract

Manganese poisoning (MP) is one of many chronic, degenerative conditions that result in spousal caregiver stress. Partners who were once fully functioning become strangers to those who love them. In time, spousal caregivers may come to view their erstwhile partners as patients, jailers, monsters, or bratty children. We explore spousal caregiver perceptions of loved ones with MP, based on the narrated experiences of five full-time South African carers and develop a typology of carer experiences, which contributes to an understanding of manganese poisoning, in particular, and to caregiving theory, in general. The findings contribute to practice by providing service providers with a rich understanding of carer stress and coping, in general, and the stress of those caring for partners with MP, in particular. Such richer understanding should extend service provider empathy and encourage appropriate, supportive intervention.