Advance Care Planning and End-of-Life Management of Adult Patients With Congenital Heart Disease-Reference-Cited by-同舟云学术

Advance Care Planning and End-of-Life Management of Adult Patients With Congenital Heart Disease

Published:2013-01 Issue:1 Volume:4 Page:62-69
ISSN:2150-1351
Container-title:World Journal for Pediatric and Congenital Heart Surgery
language:en
Short-container-title:World J Pediatr Congenit Heart Surg

Author:

Kovacs Adrienne H.¹,Landzberg Michael J.²,Goodlin Sarah J.³⁴

Affiliation:

1. Toronto Congenital Cardiac Centre for Adults, Peter Munk Cardiac Centre, University Health Network, University of Toronto, Toronto, Canada

2. Boston Adult Congenital Heart (BACH) and Pulmonary Hypertension Group, Boston Children’s Hospital and Brigham and Women’s Hospital, Boston, MA, USA

3. Patient-centered Education and Research, Salt Lake City, UT, USA

4. Portland VA Medical Center, Portland, OR, USA

Abstract

As a result of advances in the diagnosis and treatment of congenital heart disease (CHD), it is now adult care providers, rather than pediatric providers, who are faced with the majority of patient deaths. Effective advance care planning and end-of-life (EOL) care require open communication and collaboration in order to benefit patients, family members, and clinicians. Published guidelines recommend early completion of advance directives and addressing EOL issues in routine care. This article reviews the pattern of shifting CHD mortality, current knowledge regarding advanced care planning and EOL discussions with adults with CHD (ACHD), and guidelines to facilitate and optimize these important discussions.

Publisher

SAGE Publications

Subject

Cardiology and Cardiovascular Medicine,General Medicine,Pediatrics, Perinatology and Child Health,Surgery

Link

http://journals.sagepub.com/doi/pdf/10.1177/2150135112464235

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