Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling

Author:

Zmora Rachel1ORCID,Statz Tamara L.2ORCID,Birkeland Robyn W.2,McCarron Hayley R.1ORCID,Finlay Jessica M.3,Rosebush Christina E.4,Gaugler Joseph E.2

Affiliation:

1. Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, MN, USA

2. Division of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, USA

3. Social Environment and Health, University of Michigan, Ann Arbor, MI, USA

4. Division of Environmental Health Sciences, University of Minnesota, Minneapolis, MN, USA

Abstract

Objectives: Previous analyses of interventions targeting relationships between family caregivers of people with Alzheimer’s disease and related dementias and residential long-term care (RLTC) staff showed modest associations with caregiver outcomes. This analysis aimed to better understand interpersonal and contextual factors that influence caregiver–staff relationships and identify targets for future interventions to improve these relationships. Methods: Using a parallel convergent mixed methods approach to analyze data from an ongoing counseling intervention trial, descriptive statistics characterized the sample of 85 caregivers and thematic analyses explored their experiences over 4 months. Results: The findings illustrated that communication, perceptions of care, and relationships with staff are valued by family caregivers following the transition of a relative with dementia to RLTC. Discussion: The findings deepen understanding of potential intervention targets and mechanisms. These results can inform future psychosocial and psychoeducational approaches that assist, validate, and empower family caregivers during the transition to RLTC.

Funder

Agency for Healthcare Research and Quality

Publisher

SAGE Publications

Subject

Geriatrics and Gerontology,Community and Home Care,Gerontology

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