Wellness and multiple sclerosis: The National MS Society establishes a Wellness Research Working Group and research priorities

Author:

Motl Robert W1,Mowry Ellen M2,Ehde Dawn M3,LaRocca Nicholas G4,Smith Kathy E4,Costello Kathleen4,Shinto Lynne5,Ng Alexander V6,Sullivan Amy B7,Giesser Barbara8,McCully Kevin K9,Fernhall Bo10,Bishop Malachy11,Plow Matthew12,Casaccia Patrizia13,Chiaravalloti Nancy D14

Affiliation:

1. Department of Physical Therapy, The University of Alabama at Birmingham, Birmingham, AL, USA

2. Department of Epidemiology and Department of Neurology, Johns Hopkins University, Baltimore, MD, USA

3. Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA

4. National Multiple Sclerosis Society, New York, NY, USA

5. Department of Neurology, Oregon Health & Science University, Portland, OR, USA

6. Exercise Science Program, Physical Therapy Department, Marquette University, Milwaukee, WI, USA

7. Mellen Center for MS, Cleveland Clinic Foundation, Cleveland, OH, USA

8. Department of Neurology, University of California, Los Angeles, Los Angeles, CA, USA

9. Department of Kinesiology, University of Georgia, Athens, GA, USA

10. College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, USA

11. Early Childhood, Special Education, and Rehabilitation Counseling, University of Kentucky, Lexington, KY, USA

12. Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, USA

13. Icahn School of Medicine at Mount Sinai and Advanced Research Science Center, City University at New York, New York, NY, USA

14. Kessler Foundation, East Hanover, NJ, USA

Abstract

Background: People with multiple sclerosis (MS) have identified “wellness” and associated behaviors as a high priority based on “social media listening” undertaken by the National MS Society (i.e. the Society). Objective: The Society recently convened a group that consisted of researchers with experience in MS and wellness-related research, Society staff members, and an individual with MS for developing recommendations regarding a wellness research agenda. Method: The members of the group engaged in focal reviews and discussions involving the state of science within three approaches for promoting wellness in MS, namely diet, exercise, and emotional wellness. Results: That process informed a group-mediated activity for developing and prioritizing research goals for wellness in MS. This served as a background for articulating the mission and objectives of the Society’s Wellness Research Working Group. Conclusion: The primary mission of the Wellness Research Working Group is the provision of scientific evidence supporting the application of lifestyle, behavioral, and psychosocial approaches for promoting optimal health of mind, body, and spirit (i.e. wellness) in people with MS as well as managing the disease and its consequences.

Publisher

SAGE Publications

Subject

Neurology (clinical),Neurology

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