Parents' and Pediatricians' Views of Individuals with Meningomyelocele-Reference-Cited by-同舟云学术

Parents' and Pediatricians' Views of Individuals with Meningomyelocele

Published:1996-03 Issue:3 Volume:35 Page:113-117
ISSN:0009-9228
Container-title:Clinical Pediatrics
language:en
Short-container-title:Clin Pediatr (Phila)

Author:

Blaymore Bier Jo-Ann¹,Liebling Jill A.¹,Morales Yesenia¹,Carlucci Marianne¹

Affiliation:

1. Child Development Center, Department of Pediatrics, Rhode Island Hospital and Brown University School of Medicine, Providence, Rhode Island

Abstract

The parents of 63 individuals with meningomyelocele completed a scale examining the effects of their child's disability on their family. Eighty-six pediatricians also completed the scale as they predicted parents would respond. Medical and psychosocial data were also obtained. The results showed the following: (1) A higher level lesion was associated with parental reports of a more negative impact on the family ( p <.05), and (2) pediatricians predicted a more negative impact than was reported by the parents ( p <.001 ). We conclude that pediatricians overestimate the negative effects while also underestimating the positive effects of the disability on the family.

Publisher

SAGE Publications

Subject

Pediatrics, Perinatology and Child Health

Link

http://journals.sagepub.com/doi/pdf/10.1177/000992289603500301

Reference22 articles.

1. Diagnosis and Management of Neural-Tube Defects Today

2. The Changing Epidemiology of Neural Tube Defects

3. Mothers' perceptions of parenting a child with spina bifida

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