Transcultural Understanding of a Hereditary Disorder

Author:

Handelman Lauren1,Menahem Samuel1,Eisenbruch I. Maurice1

Affiliation:

1. Departments of Child and Family Psychiatry and Cardiology, Royal Children's Hospital, Melbourne, Australia

Abstract

A case study of a family referred for clarification of cultural issues illustrates how a transcultural psychiatric service developed in the pediatric hospital setting can be used to advantage. A Vietnamese family with an inherited disorder, Mucopolysaccharidosis type VI (Maroteaux-Lamy syndrome, MPS VI),1 resisted genetic counseling and contraception. Three out of their six children were affected, one with a fatal outcome. The transcultural consultation offered an understanding of their behavior and facilitated subsequent management.

Publisher

SAGE Publications

Subject

Pediatrics, Perinatology and Child Health

Reference14 articles.

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3. Good BJ, Good MD The meaning of symptoms: A cultural hermeneutic model for clinical practice . In: Eisenberg L and Kleinman A. eds. The Relevance of Social Science for Medicine. Boston: D. Riedel , 1981:165-96.

4. Doctor-Patient Negotiation and Other Social Science Strategies in Patient Care

5. The summer disease

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