The HOMESIDE Study—A Research Project to Support People Living With Dementia and Their Family Caregivers: Preliminary Report on Reading Intervention

Author:

Smrokowska-Reichmann Agnieszka1ORCID,Janus Edyta1,Tamplin Jeanette2,Odell-Miller Helen3,Stensæth Karette4,Wenborn Jennifer3,Viken Rønnaug Modell4,Wosch Thomas5,Bukowska Anna A.1,Sousa Tanara Vieira2,Baker Felicity Anne2

Affiliation:

1. University of Physical Education in Kraków, Poland

2. The University of Melbourne, VIC, Australia

3. Anglia Ruskin University, Cambridge, UK

4. Norwegian Academy of Music, Oslo, Norway

5. Hochschule für angewandte Wissenschaften Würzburg-Schweinfurt, Germany

Abstract

The behavioral and psychological symptoms of dementia (BPSD) can be challenging for family caregivers to cope with, leading to distress and fatigue. It is therefore important to offer effective strategies to reduce the impact of BPSD. The HOMESIDE randomized controlled trial (RCT) was testing purposefully developed interventions to improve the quality of life and wellbeing of dyads of people with dementia and family caregivers as a result of reduction of BPSD. HOMESIDE RCT was conducted in Australia, Germany, Norway, Poland and the United Kingdom between 2019 and 2022. The study design was a three-arm parallel-group single-blinded, pragmatic RCT with a sample size of 432 dyads. Dyads were randomly allocated to one of three treatment conditions: Music Intervention plus Standard Care; or Reading Intervention plus Standard Care; or Standard Care only. The Reading Intervention (RI) within the HOMESIDE RCT aimed to evoke shared discussion, reminiscence, meaningful shared experiences and consequently enrich everyday life, interaction and the emotional connection between the caregiver (CG) and carereceiver (CR); as well as to enhance activities of daily living and to promote relaxation or stimulation as appropriate. This paper describes the underlying conceptual framework, the content, and delivery of the Reading Intervention within the HOMESIDE RCT.

Funder

Federal Ministry of Education and Research, Germany

The National Centre for Research and Development and Alzheimer’s Society, UK

Norwegian Research Council

The National Centre for Research and Development, Poland

National Health and Medical Research Council

Publisher

SAGE Publications

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