Perceived Unmet Need and Need-Related Distress of People Living With Dementia-Reference-Cited by-同舟云学术

Perceived Unmet Need and Need-Related Distress of People Living With Dementia

Published:2022-03 Issue: Volume:8 Page:233372142210928
ISSN:2333-7214
Container-title:Gerontology and Geriatric Medicine
language:en
Short-container-title:Gerontology and Geriatric Medicine

Author:

Minyo Morgan J.¹²^ORCID,Judge Katherine S.¹²

Affiliation:

1. Department of Psychology, Cleveland State University, Cleveland, OH, USA

2. Center for Research and Education, Benjamin Rose Institute on Aging, Cleveland, OH, USA

Abstract

The unmet needs of people living with dementia have been shown to be multidimensional and impact well-being. However, there are a lack of studies examining variability of unmet needs and need-related distress from the person living with dementia’s perspective. The current study ( n = 12) examined the self-reported unmet needs and need-related distress of people with mild to moderate dementia. Seventy-five percent of participants ( n = 9) identified at least one unmet need and 50% ( n = 6) reported 10 or more unmet needs. “Finding and Arranging Services” and “Health Information” subscales had the highest reported average unmet needs. The most frequently reported unmet need-item was “ getting information about your memory problems?” Participants reported variability in distress for both unmet and met needs. Continued research can provide beneficial information on the relationship between unmet needs, need-related distress, and outcomes of well-being for future interventions.

Publisher

SAGE Publications

Subject

Geriatrics and Gerontology

Link

http://journals.sagepub.com/doi/pdf/10.1177/23337214221092886

Reference43 articles.

1. Need-driven dementia-compromised behavior: An alternative view of disruptive behavior

2. Bass D. M., Hornick T., Kunik M., Judge K. S., Primetica B., Kearney K., Rentsch J., McCarthy C., Grim J. (2019). Findings from a real-world translation study of the evidence-based “Partners in Dementia Care”. Innovation in Aging, 3(3), 1–14. https://doi.org/10.1093/geroni/igz031

3. Bass D. M., Judge K. S., Snow A. L., Wilson N. L., Morgan R. O., Maslow K., Randazzo R., Moye J. A., Odenheimer G. L., Archambault E., Elbein R., Pirraglia P., Teasdale T. A., McCarthy C. A., Looman W. J., Kunik M. E. (2014). A controlled trial of Partners in Dementia Care: Veteran outcomes after six and twelve months. Alzheimer’s Research & Therapy, 6(9), 9. https://doi.org/10.1186/alzrt242

4. Bass D. M., Judge K. S., Snow A. L., Wilson N. L., Morgan R., Looman W. J., McCarthy C. A., Maslow K., Moye J. A., Randazzo R., Garcia-Maldonado M., Elbein R., Odenheimer G., Kunik M. E. (2013). Caregiver outcomes of Partners in Dementia Care: Effect of a care coordination program for veterans with dementia and their family members and friends. Journal of the American Geriatric Society, 61(8), 1377–1386. https://doi.org/10.1111/jgs.12362

Cited by 3 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Dalzanemdor (SAGE‐718), a novel, investigational N‐methyl‐D‐aspartate receptor positive allosteric modulator: Safety, tolerability, and clinical pharmacology in randomized dose‐finding studies in healthy participants and an open‐label study in participants with Huntington's disease;Clinical and Translational Science;2024-07

2. Identifying longitudinal healthcare pathways and subsequent mortality for people living with dementia in England: an observational group-based trajectory analysis;BMC Geriatrics;2024-02-14

3. Factors influencing the psychosocial well‐being of people with dementia and their informal caregivers: A systematic review of dyadic studies;International Journal of Mental Health Nursing;2023-12-22