A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study-Reference-Cited by-同舟云学术

A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study

Published:2022-02-22 Issue:3 Volume:17 Page:696-704
ISSN:1932-2968
Container-title:Journal of Diabetes Science and Technology
language:en
Short-container-title:J Diabetes Sci Technol

Author:

McGorm Kelly J.¹,Brown James D.¹,Thomson Rebecca L.¹,Oakey Helena¹,Moore Belinda²,Hendry Alexandra¹,Colman Peter G.²,Craig Maria E.³⁴,Davis Elizabeth A.⁵,Harris Mark⁶,Harrison Leonard C.⁷,Haynes Aveni⁵,Soldatos Georgia⁸,Vuillermin Peter⁹,Wentworth John M.²⁷,Couper Jennifer J.¹¹⁰,Penno Megan A. S.¹^ORCID,

Affiliation:

1. Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia

2. Department of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia

3. School of Women’s and Children’s Health, Faculty of Medicine, UNSW Sydney, Sydney, NSW, Australia

4. Institute of Endocrinology and Diabetes, The Children’s Hospital at Westmead, Sydney, NSW, Australia

5. Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, WA, Australia

6. Queensland Children’s Hospital, South Brisbane, QLD, Australia

7. Walter and Eliza Hall Institute of Medical Research, Melbourne, VIC, Australia

8. Diabetes and Vascular Medicine Unit, Monash Health, Melbourne, VIC, Australia

9. Child Health Research Unit, Barwon Health, Geelong, VIC, Australia

10. Women’s and Children’s Hospital, Adelaide, SA, Australia

Abstract

Background: The Environmental Determinants of Islet Autoimmunity (ENDIA) study is an Australia-wide pregnancy-birth cohort study following children who have a first-degree relative with type 1 diabetes (ACTRN1261300794707). A dedicated ENDIA Facebook page was established in 2013 with the aim of enhancing recruitment and supporting participant retention through dissemination of study information. To measure the impact of Facebook, we evaluated the sources of referral to the study, cohort demographics, and withdrawal rates. We also investigated whether engagement with Facebook content was associated with specific post themes. Methods: Characteristics of Facebook versus conventional recruits were compared using linear, logistic, and multinomial logistic regression models. Logistic regression was used to determine the risk of study withdrawal. Data pertaining to 794 Facebook posts over 7.5 years were included in the analysis. Results: Facebook was the third largest source of referral (300/1511; 19.9%). Facebook recruits were more frequently Australian-born ( P < .001) enrolling postnatally ( P = .01) and withdrew from the study at a significantly lower rate compared with conventional recruits (4.7% vs 12.3%; P < .001) after a median of follow-up of 3.3 years. Facebook content featuring stories and images of participants received the highest engagement even though <20% of the 2337 Facebook followers were enrolled in the study. Conclusions: Facebook was a valuable recruitment tool for ENDIA. Compared with conventional recruits, Facebook recruits were three times less likely to withdraw during long-term follow-up and had different sociodemographic characteristics. Facebook content featuring participants was the most engaging. These findings inform social media strategies for future cohort and type 1 diabetes studies. Trial Registration: Australia New Zealand Clinical Trials Registry: ACTRN1261300794707.

Publisher

SAGE Publications

Subject

Biomedical Engineering,Bioengineering,Endocrinology, Diabetes and Metabolism,Internal Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/19322968221079867

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Cited by 2 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Protocol for a nested case-control study design for omics investigations in the Environmental Determinants of Islet Autoimmunity cohort;Annals of Medicine;2023-04-12

2. Experiences of Caregivers and At-Risk Children Enrolled in a Prospective Pregnancy-Birth Cohort Study into the Causes of Type 1 Diabetes: The ENDIA Study;Children;2023-03-29