Registry of Youth Onset Diabetes in India (YDR)

Author:

Praveen Pradeep A.1,Madhu Sri Venkata2,Mohan Viswanathan3,Das Siddhartha4,Kakati Sanjeeb5,Shah Nalini6,Chaddha Manoj7,Bhadada Sanjay Kumar8,Das Ashok Kumar9,Shukla Deepak Kumar10,Kaur Tanvir10,Tandon Nikhil1

Affiliation:

1. All India Institute of Medical Sciences, New Delhi, India

2. University College of Medical Sciences, Delhi, India

3. Madras Diabetes Research Foundation, Chennai, India

4. SCB Medical College and Hospital, Cuttuck, India

5. Assam Medical College, Dibrugarh, Assam, India

6. Seth G S Medical College & K.E.M. Hospital, Mumbai, India

7. PD Hinduja Hospital and Medical Research Centre, Mumbai, India

8. Post Graduate Institute of Medical Education and Research, Chandigarh, India

9. Pondicherry Institute of Medical Sciences, Puducherry, India

10. Indian Council of Medical Research, New Delhi, India

Abstract

Background: With the aim of addressing the relative scarcity of information on youth-onset diabetes in India, the Indian Council of Medical Research (ICMR) decided to establish the Registry of People with Diabetes with Young Age at Onset (YDR) in 2006. The major objectives of YDR are to generate information on disease pattern or types of youth-onset diabetes including their geographical variations within India and to estimate the burden of diabetes complications. Methods: YDR is an observational multicenter clinic based registry enlisting physician diagnosed diabetes in individuals below 25 years of age. Diabetes was classified using symptom based clinical criteria. YDR data collection is coordinated through regional collaborating centers and their interacting reporting centers across India. A baseline and an annual follow-up proformas are used to obtain information on sociodemographic details, clinical profile, and anthropometric and laboratory measurements of the patients. Results: In phase 1, the registry has enrolled 5546 patients, in which type 1 diabetes mellitus (T1DM) was the most prevalent (63.9%), followed by youth-onset type 2 diabetes mellitus (T2DM) (25.3%). Conclusion: This registry provides a unique opportunity to study the natural history of youth-onset diabetes in India.

Publisher

SAGE Publications

Subject

Biomedical Engineering,Bioengineering,Endocrinology, Diabetes and Metabolism,Internal Medicine

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