Understanding and Improving the Care of Older Adults Living with Dementia Across Four Canadian Provinces during the COVID-19 Pandemic: A Mixed-Methods Study to Inform Policy and Practices-Reference-Cited by-同舟云学术

Understanding and Improving the Care of Older Adults Living with Dementia Across Four Canadian Provinces during the COVID-19 Pandemic: A Mixed-Methods Study to Inform Policy and Practices

Published:2021-06-10 Issue:1 Volume:4 Page:1-15
ISSN:2561-7516
Container-title:Science of Nursing and Health Practices
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Short-container-title:snahp

Author:

Vedel Isabelle¹,Arsenault-Lapierre Geneviève²,Bergman Howard³,Bronskill Susan⁴,Couturier Yves⁵,Godard-Sebillotte Claire⁶,Henein Mary⁷,Kosteniuk Julie⁸,Khanassov Vladimir⁹,McAiney Carrie¹⁰,Morgan Debra¹¹,O’Brien Nadia¹²,O’Connell Megan¹³,Rojas-Rozo Laura¹⁴,Seitz Dallas¹⁵,Sivananthan Saskia¹⁶,Smith Eric¹⁷,Sourial Nadia¹⁸,Wilchesky Machelle¹⁹,

Affiliation:

1. MD, PhD, Associate Professor, MSc Graduate Program Director, Department of Family Medicine, McGill University, 5858 Côte-des-Neiges Road, 3rd Floor Montreal, QC, Canada, H3S 1Z1

2. PhD, Senior Research Associate, Lady Davis Institute for Medical Research at the Mortimer B. Davis Jewish General Hospital, 3755 Chemin de la Côte-Sainte-Catherine, Montréal, QC H3T 1E2

3. MD, FCFP, FRCPC, FCAHS, Professor, Department of Family Medicine, McGill University, 5858 Côte-des-Neiges Road, 3rd Floor Montreal, Quebec H3S 1Z1 Quebec, Canada, Assistant Dean, Department of International Affairs, Faculty of Medicine, McGill University, 5858 Côte-des-Neiges Road, 3rd Floor Montreal, Quebec H3S 1Z1 Quebec, Canada

4. PhD, Senior Core Scientist Program Lead, ICES Central, G1 06, 2075 Bayview Avenue, Toronto, Ontario M4N 3M5

5. PhD, Professor, Département de travail social, Université de Sherbrooke, 2500 Boul. de l’Université, Sherbrooke, J1K 2R1, Scientific Director, Réseau 1 Québec, Université de Sherbrooke, Campus de Longueuil, 150 Place Charles-Le Moyne, Longueuil (Québec) J4K 0A8

6. MD, PhD, Geriatrician, Department of Family Medicine, McGill University, 5858 Côte-des-Neiges Road, 3rd Floor Montreal, Quebec H3S 1Z1 Quebec, Canada

7. MSc, Research Assistant, Lady Davis Institute for Medical Research at the Mortimer B. Davis Jewish General Hospital, 3755 Chemin de la Côte-Sainte-Catherine, Montréal, QC H3T 1E2

8. PhD, Professional Research Associate, Canadian Centre for Health and Safety in Agriculture (CCHSA), University of Saskatchewan, 104 Clinic Place, P.O. Box 23, Saskatoon, SK, S7N 2Z4

9. MD, PhD, Clinician, Assistant Professor, Department of Family Medicine, McGill University, 5858 Côte-des-Neiges Road, 3rd Floor Montreal, Quebec H3S 1Z1 Quebec, Canada

10. PhD, Associate Professor, Research Chair in Dementia, School of Public Health and Health Systems, University of Waterloo, 200 University Avenue West, Waterloo, ON, Canada N2L 3G1

11. PhD, RN, Professor and Chair, Canadian Centre for Health and Safety in Agriculture (CCHSA), University of Saskatchewan, 104 Clinic Place, P.O. Box 23, Saskatoon, SK, S7N 2Z4, Fellow, Canadian Academy of Health Sciences / Académie canadienne des sciences de la santé, 70 Georges St 3rd Floor, Ottawa, ON, K1N 5V9

12. PhD, Postdoctoral Fellow, Centre de recherche du Centre hospitalier de l’Université de Montréal (CRCHUM), 900 Saint Denis St, Montréal, Québec, H2X 0A9

13. PhD, Professor, Department of Psychology, University of Saskatchewan, 9 Campus Drive, 154 Arts Saskatoon SK S7N 5A5, Canada

14. MSc, MD, Research Assistant, Lady Davis Institute for Medical Research at the Mortimer B. Davis Jewish General Hospital, 3755 Chemin de la Côte-Sainte-Catherine, Montréal, QC H3T 1E2

15. MD, PhD, FRCPC, Associate Professor, Cumming School of Medicine, University of Calgary, 2500 University Drive NW, Calgary Alberta T2N 1N4, Canada, President, Canadian Academy of Geriatric Psychiatry, 55 St Clair Ave W, Toronto, ON M4V 2Y7

16. PhD, Chief Research and Knowledge Transfer and Exchange Officer, Alzheimer Society of Canada, 20 Eglinton Avenue West, 16th Floor, Toronto, Ontario M4R 1K8

17. MD, MPH, FRCPC, FAHA, Professor, Cumming School of Medicine, University of Calgary, 2500 University Drive NW, Calgary Alberta T2N 1N4, Canada

18. PhD, Assistant Research Professor, Département de médecine de famille et de médecine d’urgence, Université de Montréal, Centre de recherche du Centre hospitalier de l’Université de Montréal (CHUM), 850 rue St-Denis, Montréal, QC, H2X 0A9 Canada

19. PhD, Assistant Professor, Department of Family Medicine, McGill University, 5858 Côte-des-Neiges Road, 3rd Floor Montreal, Quebec H3S 1Z1 Quebec, Canada, Director of Research, Donald Berman Maimonides Geriatric Centre, 5795, Avenue Caldwell, Montreal, H4W 1W3, Canada

Abstract

Introduction: The implications of the COVID-19 pandemic are far reaching for persons living with dementia (PLWD) in the community and in long-term care (LTC), as they are among the most vulnerable. PLWD are at risk for severe COVID-19 and a disruption in accessing supportive and health care due to the confinement measures. Objectives: 1) To measure the impact of the pandemic on health and social services use, mortality, COVID-19 infection where possible of PLWD both in the community and in LTC facilities compared to before the pandemic; 2) To understand PLWDs’ and care partners’ perceived needs, behaviours related to health service use and the experiences of PLWD, care partners, and physicians with health and social services; 3) To generate and disseminate evidence-based and actionable recommendations on effective strategies to address the current pandemic and prepare for subsequent waves. Methods: A convergent mixed-methods design with a participatory approach in 4 Canadian provinces. Objective 1 will use a retrospective observational cohort design to examine administrative health data. Outcomes will include mortality (all-cause; COVID-19 related), health service use and, where possible, infection rates. Objective 2 will use an explanatory multiple case study, with surveys and semi-structured interviews to explore the experiences of PLWD and care partners using health and social services and the role of sociodemographic factors. The third, knowledge translation objective will integrate these results using a deliberative dialogue with key stakeholders (decision-makers, healthcare managers, PLWD, care partners, and clinicians) to develop and disseminate evidence-based recommendations for practice and policy. Impact and conclusion: This project will provide an understanding of the impact of the COVID-19 pandemic on PLWD and care partners in Canada and highlight areas for improvement.

Publisher

Consortium Erudit

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