The Work Ahead for Intellectual and Developmental Disabilities Research

Author:

Kover Sara T.1,Abbeduto Leonard2

Affiliation:

1. Sara T. Kover, University of Washington

2. Leonard Abbeduto, University of California, Davis.

Abstract

Abstract In “Toward Equity in Research on Intellectual and Developmental Disabilities,” we sought to make entrenched assumptions and practices of intellectual and developmental disabilities research visible by explicitly describing the status quo in terms of models of disability, participant and researcher identities, research priorities, and biases in measurement and treatment approaches. We then curated individual- and systems-level actions drawn from disability justice and broader social justice lenses to offer a way forward. We focused on three major areas (i.e., intersectionality and person-centered approaches, participatory research, and interprofessional collaboration), depicting influences, methods, and actions in a framework of disability, identity, and culture. In this Author Response, we address five commentaries that critique and extend that synthesis.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Subject

Psychiatry and Mental health,Neurology (clinical),Arts and Humanities (miscellaneous),Developmental and Educational Psychology,Neuropsychology and Physiological Psychology,General Medicine,Pediatrics, Perinatology and Child Health

Reference25 articles.

1. American Medical Association and Association of American Medical Colleges. (2021). Advancing health equity: A guide to language, narrative and concepts. www.ama-assn.org/equity-guide

2. Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability;Annamma,;Race Ethnicity and Education,(2013)

3. Conceptualizing inclusive research with people with intellectual disability;Bigby,;Journal of Applied Research in Intellectual Disabilities,(2014)

4. A theory of mine: My perspective on perspective-taking;Burks-Abbott,;Autism in Adulthood,(2022)

Cited by 2 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps;American Journal on Intellectual and Developmental Disabilities;2024-08-29

2. From a concept to a theory: The six eras of quality of life research and application;Research in Developmental Disabilities;2024-07

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