Improving Retention of Diverse Samples in Longitudinal Research on Developmental Disabilities
Author:
Song Jieun1, Dembo Robert S.1, Smith DaWalt Leann1, Ryff Carol D.1, Mailick Marsha R.1
Affiliation:
1. Jieun Song, Robert S. Dembo, Leann Smith DaWalt, Carol D. Ryff, and Marsha R. Mailick, University of Wisconsin-Madison. Marsha R. Mailick, PhD, made an equal contribution.
Abstract
AbstractDevelopmental disabilities (DD) research has depended on volunteer and clinical samples, with limited racial/ethnic diversity. This study focused on improving diversity and retention in DD research. The sample included 225 parents with a child with DD and 4,002 parents without children with DD from diverse racial/ethnic groups, drawn from Midlife in the United States, a national longitudinal study. Unexpectedly, parents of children with DD from diverse racial/ethnic groups were more likely to participate longitudinally than other groups. Relative participant payment was a factor that enhanced their likelihood of retention. This research illustrates how large national studies can be leveraged to increase representativeness and ongoing participation of diverse racial/ethnic groups, especially in combination with other factors, such as parenting a child with DD.
Publisher
American Association on Intellectual and Developmental Disabilities (AAIDD)
Subject
Psychiatry and Mental health,Neurology (clinical),Arts and Humanities (miscellaneous),Developmental and Educational Psychology,Neuropsychology and Physiological Psychology,General Medicine,Pediatrics, Perinatology and Child Health
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