Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review
Author:
Rivera-Figueroa Karla1, Marfo Nana Yaa A.1, Eigsti Inge-Marie1
Affiliation:
1. Karla Rivera-Figueroa, Nana Yaa A. Marfo, and Inge-Marie Eigsti, University of Connecticut
Abstract
Abstract
Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate that interconnections with family and religious groups promoted positive coping and describe positive impacts of having a child with ASD. Relative to White families, community members reported reduced access to information and more inaccurate beliefs about ASD, higher levels of ASD-related stigma, and more negative experiences with healthcare providers, which serve to exacerbate healthcare disparities. Conclusions are limited by an underrepresentation of minority groups in research. We call for efforts to address the specific needs of racial and ethnic minorities.
Publisher
American Association on Intellectual and Developmental Disabilities (AAIDD)
Subject
Psychiatry and Mental health,Neurology (clinical),Arts and Humanities (miscellaneous),Developmental and Educational Psychology,Neuropsychology and Physiological Psychology,General Medicine,Pediatrics, Perinatology and Child Health
Reference122 articles.
1. Adamson,
J.,
Ben-Shlomo,
Y.,
Chaturvedi,
N.,
&
Donovan,J.
(2003).
Ethnicity, socio-economic position and gender—Do they affect reported health-care seeking behaviour?Social Science & Medicine, 57(5),
895–
904. 2. Angell,
A. M.,
Empey,
A.,
&
Zuckerman,K. E.
(2018).
A review of diagnosis and service disparities among children with autism from racial and ethnic minority groups in the United States.
InHodappR. M. &
FidlerD. J.(Eds.),International review of research in developmental disabilities (Vol. 55,
pp.145–
180).
Academic Press.
https://doi.org/10.1016/bs.irrdd.2018.08.003 3. Angell,
A. M.,
&
Solomon,O.
(2014).
The social life of health records: Understanding families' experiences of autism.
Social Science & Medicine,
117,
50–
57. 4. Angell,
A. M.,
&
Solomon,O.
(2017).
“If I was a different ethnicity, would she treat me the same?”: Latino parents' experiences obtaining autism services.
Disability & Society, 32(8),
1142–
1164.
https://doi.org/10.1080/09687599.2017.1339589 5. Baio,
J.,
Wiggins,
L.,
Christensen,
D. L.,
Maenner,
M. J.,
Daniels,
J.,
Warren,
Z.,
Kurzius-Spencer,
M.,
Zahorodny,
W.,
Robinson Rosenberg,
C.,
White,
T.,
Durkin,
M. S.,
Imm,
P.,
Nikolaou,
L.,
Yeargin-Allsopp,
M.,
Lee,
L. C.,
Harrington,
R.,
Lopez,
M.,
Fitzgerald,
R. T.,
Hewitt,
A.,
Pettygrove
,
Constantino,
J. N.,
Vehorn,
A.,
Shenouda,
J.,
Hall-Lande,
J.,
Van Naarden Bround,
K.,
&
Dowling,N. F.
(2018).
Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2014.
Morbidity and Mortality Weekly Report Surveillance Summaries, 67(6),
1–
23.
https://doi.org/10.15585/mmwr.ss6706a1
Cited by
30 articles.
订阅此论文施引文献
订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
|
|