Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study-Reference-Cited by-同舟云学术

Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study

Published:2018-05-01 Issue:3 Volume:123 Page:241-253
ISSN:1944-7515
Container-title:American Journal on Intellectual and Developmental Disabilities
language:en
Short-container-title:

Author:

Adams Dawn¹,Clarke Samantha²,Griffith Gemma¹,Howlin Pat³,Moss Jo⁴,Petty Jane⁵,Tunnicliffe Penny⁶,Oliver Chris⁷

Affiliation:

1. Dawn Adams, Griffith University, Queensland, Australia and University of Birmingham, UK;

2. Samantha Clarke, University of Birmingham, UK;Gemma Griffith, Bangor University, UK;

3. Pat Howlin, Kings College, London, UK;

4. Jo Moss, University of Birmingham, UK;

5. Jane Petty, University of Birmingham, UK and Kings College, London, UK;

6. Penny Tunnicliffe, University of Birmingham, UK; and

7. Chris Oliver, University of Birmingham, UK.

Abstract

Abstract It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB (n = 18) or low/no CB (n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Subject

Psychiatry and Mental health,Clinical Neurology,Arts and Humanities (miscellaneous),Developmental and Educational Psychology,Neuropsychology and Physiological Psychology,General Medicine,Pediatrics, Perinatology, and Child Health

Link

http://meridian.allenpress.com/ajidd/article-pdf/123/3/241/2031333/1944-7558-123_3_241.pdf

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