Affiliation:
1. Meghan M. Burke, Vanderbilt University.
2. W. Catherine Cheung, Northern Illinois University.
3. Julianna Kim, University of Maryland.
Abstract
Abstract
Systems navigation can be difficult, especially for low-resourced families (i.e., families who are “low income” or meet one of the following indicators: mother has a high school diploma or less; primary caregiver is unemployed; or the family receives governmental assistance). Navigators may help families access services; however, the training of navigators is unclear. The purpose of this study was to determine the effectiveness and feasibility of Supporting Parents to Access and Navigate Services (SPANS), a program to develop navigators. Altogether, 19 low-resourced parents of children with autism participated in SPANS. Participants demonstrated significantly improved knowledge about autism services and perceived advocacy for other families and systemic change. There was high attendance, low attrition, high acceptability, and high fidelity. Implications are discussed.
Publisher
American Association on Intellectual and Developmental Disabilities (AAIDD)
Subject
Psychiatry and Mental health,Community and Home Care,Developmental and Educational Psychology,Education,Pediatrics, Perinatology and Child Health
Reference40 articles.
1. Advocate development in the field of developmental disabilities: A data-based conceptual model;Balcazar,;Mental Retardation,(1996)
2. Long term outcomes to family caregiver empowerment;Bickman,;Journal of Child and Family Studies,(1998)
3. The intersection of race, culture, language, and disability: implications for urban education;Blanchett,;Urban Education,(2009)
4. Defining the core components of family navigation for autism spectrum disorder;Broder-Fingert,;Autism,(2020)