“Teaches People That I'm More Than a Disability”: Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities

Author:

Spassiani Natasha A.1,Sawyer Amanda R.2,Chacra Megan S. Abou2,Koch Kimberley2,Muñoz Yasmin A.2,Lunsky Yona2

Affiliation:

1. Natasha A. Spassiani, Department of Psychiatry, University of Toronto, Centre for Addiction and Mental Health (CAMH), Toronto, Canada;

2. Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.

Abstract

Abstract Individuals with intellectual and developmental disabilities (IDD) have complex healthcare needs, which are often unmet. Nominal group technique (NGT) uses a mixed-methods approach, which may engage the IDD population in the research process in a person-centered manner and address the shortcomings of traditional research methods with this population. NGT was used with a group of 10 self-advocates to evaluate a series of healthcare tools created by and for individuals with IDD. Participants provided helpful input about the strengths of these tools and suggestions to improve them. NGT was found to be an effective way to engage all participants in the research process.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Subject

Psychiatry and Mental health,Community and Home Care,Developmental and Educational Psychology,Education,Pediatrics, Perinatology, and Child Health

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