Research About Us, With Us: An Inclusive Research Case Study

Author:

Buck Andrew S.1,Chapman Richard1,Krahn Gloria L.1,Brown Christine1,Gertz Braden1,Havercamp Susan M.1,

Affiliation:

1. Andrew S. Buck, The Ohio State University Nisonger Center; Richard Chapman, Virginia Commonwealth University; Gloria L. Krahn, Oregon State University; Christine Brown, Braden Gertz, and Susan M. Havercamp, The Ohio State University Nisonger Center; and The Ohio State University Nisonger RRTC on Health and Function

Abstract

Abstract Inclusive research combines the expertise of academically trained researchers with the lived experience of individuals with disabilities to render results that are more accessible, accountable, and meaningful to the disability community. In this case study, adults with intellectual and developmental disabilities (IDD) contributed as co-researchers to a series of studies on mental health of adults with intellectual disability. The research model, specific engagement strategies, and lessons learned are shared. Feedback from members of the research team suggests that including adults with IDD as co-researchers benefited investigators, co-researchers with IDD, and project outcomes. Our case study emphasizes the valuable contributions of research partners with IDD and provides a model that may be adapted and utilized by researchers to enhance their practice.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Reference36 articles.

1. Americans With Disabilities Act of 1990,(1990)

2. Doing it together [DM special issue];Butler,;British Journal of Learning Disabilities,(2012)

3. Universal Design for Learning guidelines version 2.2;CAST.,(2018)

4. Citizenship of persons with intellectual disabilities within the frame of inclusive research: A scoping review of studies to inform future research;Chalachanová,;European Journal of Disability Research,(2021)

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