Affiliation:
1. Lynda Lahti-Anderson, University of Minnesota; Yoshiko Kardell, Human Services Research Institute; Sarah Hall, University of Minnesota; Sandra Magaña, University of Texas at Austin; Michelle Reynolds, University of Missouri–Kansas City; and Jeanette Córdova, Association of University Centers on Disabilities
Abstract
Abstract
Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science Conference on Community Living: Engaging Persons With Intellectual and Developmental Disabilities From Underserved Racial, Ethnic, Linguistic, and Cultural Groups in Research was held. This article summarizes the efforts of the workgroup that developed research goals related to supporting families of people with IDD. The focus was on families with intersectional identities and minoritized communities. Recommended areas of future research include exploratory research to better understand the experiences of these families, perspectives of families with intersectional identities about the formal support system, funding for family support and services, and inclusive research strategies.
Publisher
American Association on Intellectual and Developmental Disabilities (AAIDD)