Service Use Patterns by Children With Down Syndrome in a Canadian Region-Reference-Cited by-同舟云学术

Service Use Patterns by Children With Down Syndrome in a Canadian Region

Published:2023-01-27 Issue:1 Volume:61 Page:79-88
ISSN:1934-9556
Container-title:Intellectual and Developmental Disabilities
language:en
Short-container-title:

Author:

McLennan John D.¹,Fulford Casey²,Hrycko Sophia³,Cobigo Virginie⁴,Tahir Munazza⁵

Affiliation:

1. John D. McLennan, Department of Psychiatry and Community Health Sciences, Cumming School of Medicine, University of Calgary, Alberta, Canada

2. Casey Fulford, Faculty of Social Sciences, University of Ottawa, Ottawa, ON, Canada

3. Sophia Hrycko, Children's Hospital of Eastern Ontario & Department of Psychiatry, University of Ottawa, ON, Canada

4. Virginie Cobigo, Children's Hospital of Eastern Ontario & Faculty of Social Sciences, University of Ottawa, Ottawa, ON, Canada

5. Munazza Tahir, Faculty of Social Sciences, University of Ottawa, Ottawa, ON, Canada

Abstract

Abstract Children with Down syndrome require services from different sectors over time to optimize health and development, however, there is little information on longitudinal, cross-sector service use. Parents of children with Down syndrome attending a Canadian children's hospital participated in semistructured interviews covering life-time multiple sector service use. Five key service patterns were identified: (1) primary care physicians playing a circumscribed role; (2) a marked shift in public habilitative service receipt from development agencies in the preschool years to exclusive school delivery after school entry; (3) families obtaining private services to address gaps from public sector services; (4) a prominent role for parents to identify additional services; and (5) service variability as a function of timing and severity of medical comorbidity.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Subject

Psychiatry and Mental health,Community and Home Care,Developmental and Educational Psychology,Education,Pediatrics, Perinatology and Child Health

Link

https://meridian.allenpress.com/idd/article-pdf/61/1/79/3184070/i1934-9556-61-1-79.pdf

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