Affiliation:
1. Rumi Agarwal, FIU Embrace, Florida International University
2. Laura M. Heron, Florida International University
3. Shanna L. Burke, Robert Stempel College of Public Health and Social Work, Florida International University
Abstract
Abstract
Families of children with intellectual and developmental disabilities (IDD) experience significant financial hardship, which could improve through financial planning and utilization of accounts such as the Achieving a Better Life Experience (ABLE). Unfortunately, current rates of banking are low among individuals with disabilities, and no study has examined this phenomenon specifically among families of children with IDD. In this cross-sectional study, 176 parents shared their financial planning and utilization experience. Findings indicate that parents worry about their child's financial future, however, paradoxically, are not engaging in financial planning. Utilization of ABLE, checking and savings accounts, and special needs trusts are also low. Parents reported several programmatic and personal barriers which could inform immediate programmatic changes and long-term policy considerations.
Publisher
American Association on Intellectual and Developmental Disabilities (AAIDD)
Subject
Psychiatry and Mental health,Community and Home Care,Developmental and Educational Psychology,Education,Pediatrics, Perinatology and Child Health
Reference30 articles.
1. Bowey,
L.,
&
McGlaughlin,A.
(2007).
Older carers of adults with a learning disability confront the future: Issues and preferences in planning.
The British Journal of Social Work,
37(1),
39–
54.
https://doi.org/10.1093/bjsw/bcl052
2. Braun,
V.,
&
Clarke,V.
(2019).
Reflecting on reflexive thematic analysis.
Qualitative Research in Sport, Exercise and Health,
11(4),
589–
597.
https://doi.org/10.1080/2159676X.2019.1628806
3. Burke,
M.,
Arnold,
C.,
&
Owen,A.
(2018).
Identifying the correlates and barriers of future planning among parents of individuals with intellectual and developmental disabilities.
Intellectual and Developmental Disabilities,
56(2),
90–
100.
https://doi.org/10.1352/1934-9556-56.2.90
4. Caniglia,
J.,
&
Michali,Y.
(2018).
A financial literacy course for postsecondary students with intellectual disabilities.
Journal of Postsecondary Education and Disability,
31(3),
295–
300.
5. Curley,
P.
(2020).
4Q 2019 529 and ABLE Market Sizing Highlights.
529Conference.
https://www.529conference.com/4q-2019-529-and-able-market-sizing-highlights/