Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People With Intellectual and Developmental Disabilities

Author:

Tichá Renáta1,Pettingell Sandra L.1,Lemanowicz James2,Feinstein Celia S.3,Bershadsky Julie4,Houseworth James4,Zhang Alicia Q.4

Affiliation:

1. Renáta Tichá and Sandra L. Pettingell, University of Minnesota

2. James Lemanowicz, Temple University

3. Celia S. Feinstein, CFA, Inc.

4. Julie Bershadsky, James Houseworth, and Alicia Q. Zhang, University of Minnesota

Abstract

Abstract The purpose of this study is to lay a foundation for illustrating the importance of longitudinal data collection by sharing the results of the Independent Monitoring for Quality (IM4Q) program in Pennsylvania designed to collect data over time on the quality of services for adults with intellectual and developmental disabilities. In this article, we report on the history and characteristics of the IM4Q program, describe the key variables of interest, and highlight the trends in the key variables over 3 years of data collection (2013, 2016, and 2019). The descriptive results indicate mixed trends for the three areas of focus: comparable rates of people employed in community-based settings, less support-related choice, and better everyday choice-making outcomes.

Publisher

American Association on Intellectual and Developmental Disabilities (AAIDD)

Subject

Psychiatry and Mental health,Community and Home Care,Developmental and Educational Psychology,Education,Pediatrics, Perinatology and Child Health

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