Compound Caregiving: Toward a Research Agenda
Author:
Lee Chung Eun1, Burke Meghan M.1, Perkins Elizabeth A.1
Affiliation:
1. Chung Eun Lee, Chonnam National University, Republic of Korea; Meghan M. Burke, University of Illinois at Urbana-Champaign; and Elizabeth A. Perkins, University of South Florida.
Abstract
Abstract
Aging family caregivers of adults with intellectual and developmental disabilities (IDD) have unique circumstances setting them apart from the general caregiving population. Such differences include the extensive duration of the caregiving, and health concerns that manifest in the caregiver and individuals with IDD over time. Because of increasing longevity, family caregivers are likely to become compound caregivers (i.e., individuals caregiving for multiple people). Almost 70% of family caregivers of individuals with IDD experience compound caregiving, yet we know very little about compound caregiving. In this article, we highlight the importance of supporting compound caregivers by identifying research issues that address current challenges and future directions. Implications for research are noted, including the need for multidimensional outcome measures and longitudinal studies.
Publisher
American Association on Intellectual and Developmental Disabilities (AAIDD)
Subject
Psychiatry and Mental health,Community and Home Care,Developmental and Educational Psychology,Education,Pediatrics, Perinatology and Child Health
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