Supportive Mobility Across the Lifespan in Cerebral Palsy: A Modified Delphi Study to Establish Stakeholder Research Priorities

Abstract

AbstractAimThe overarching aim of this research was to 1) Understand the mobility experiences, supported mobility device (SMD) use, and desired participation outcomes of people with cerebral palsy (CP) across the lifespan; and 2) Describe how perspectives of rehabilitation care and professional resources may influence mobility decision-making processes and outcomes. The aim of this study was to co-develop research priorities and identify meaningful research questions with a diverse group of stakeholders representing the CP community for implementation in subsequent research activities.MethodsA modified, three-round Delphi consensus study was conducted with a stakeholder advisory panel consisting of three adults with CP, two parents of children with CP, and four SMD providers.ResultsThe advisory panel identified 13 unique topical categories focused on SMD selection and use, stratified by age group and stakeholder role. Questions or statements within each category were ranked, and top consensus and concordance statements were retained, reviewed, and refined for use in a co-developed focus group guide.InterpretationA modified Delphi process was a useful tool for stakeholders in co-developing research priorities related to SMD use across the lifespan. Drawing on the lived expertise of stakeholders is important in facilitating improved research translation in the CP community.What this Paper AddsNine stakeholders from the CP community participated as Stakeholder Advisory Panelists and co-developers of research toolsStakeholders identified 175 unique responses across 12 SMD related categoriesStakeholders prioritized 38 mobility technology research priorities during consensus-buildingResults from consensus-building will be directly implemented into a qualitative focus group protocol