Bored, isolated and anxious: Experiences of prolonged hospitalization during high-risk pregnancy and preferences for improving care

Abstract

AbstractAntepartum women who experience prolonged hospitalization are at greater risk for increased stress, anxiety, and depression. The purpose of this study was to examine women’s and healthcare staff’s experiences with prolonged hospitalizations during pregnancy and explore patient-centered intervention options. Guided by Social Support Theory, we conducted qualitative (focus group/interviews) and quantitative (surveys) methods. Patient survey respondents (N=57) were mostly white (77%), non-Hispanic (86%), and married (65%). Qualitative data (N=17) revealed challenges to women’s wellbeing related to: a) lack of knowledge; b) stress and anxiety; c) loss of independence; and d) social isolation in hospital; regarding concerns about hospitalization and competing demands at home. Suggested strategies for improving women’s experiences included interventions that involve family/friends, improved information sharing, and increased onsite services to facilitate a positive experience. This critical groundwork informed development of theory-based, patient-centered interventions to increase knowledge and enhance social support, among women who experience prolonged hospitalization during pregnancy.