Perspectives of Researchers and Clinicians on Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research: An Interview Study

Abstract

AbstractStudy DesignQualitative studyObjectiveTo explore the perspectives of preclinical spinal cord researchers and clinicians involved in the treatment of spinal cord injury on patient and public involvement (PPI) in preclinical research.SettingPreclinical spinal cord injury research.MethodsSemi-structured interviews were conducted online to collect data that was analysed thematically.FindingsTwenty-two participants (11 clinicians and 11 preclinical researchers) were interviewed. Participants recognised the value of PPI in improving the relevance of preclinical spinal cord research and providing a source of motivation for lab-based research. The perceived distance between preclinical research and the day-to-day experiences of PPI contributors was identified as a major barrier. Inclusive practices and the highly networked and motivated community of people affected by spinal cord injury were noted as facilitators. Building strong partnerships was considered essential for successful PPI.ConclusionsWhile PPI has traditionally been more commonly associated with clinical research, participants identified the potential benefits of PPI in preclinical spinal cord research to provide context and improve research relevance and impact. Preclinical researchers should explore how PPI can be incorporated in their work.