Exploring research team members’ and trial participants’ perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study-Reference-Cited by-同舟云学术

Exploring research team members’ and trial participants’ perceptions of acceptability and implementation within one videoconference-based supportive care program for individuals affected by systemic sclerosis during COVID-19: a qualitative interview study

Published:2023-03-31 Issue:7 Volume:13 Page:442-452
ISSN:1869-6716
Container-title:Translational Behavioral Medicine
language:en
Short-container-title:

Author:

Wurz Amanda¹²^ORCID,Ellis Kelsey²,Duchek Delaney²^ORCID,Bansal Mannat²,Carrier Marie-Eve³^ORCID,Tao Lydia³,Dyas Laura⁴^ORCID,Kwakkenbos Linda⁵⁶⁷⁸^ORCID,Levis Brooke³⁹¹⁰^ORCID,El-Baalbaki Ghassan¹¹^ORCID,Rice Danielle B³¹²^ORCID,Wu Yin¹³^ORCID,Henry Richard S³¹²,Bustamante Laura¹⁴,Harb Sami³¹³,Hebblethwaite Shannon¹⁴,Patten Scott B¹⁵¹⁶^ORCID,Bartlett Susan J¹⁷¹⁸^ORCID,Varga John¹⁹,Mouthon Luc²⁰²¹,Markham Sarah²²^ORCID,Thombs Brett D³⁹¹²¹⁷²³^ORCID,Culos-Reed S Nicole²²⁴²⁵^ORCID, ,

Affiliation:

1. School of Kinesiology, University of the Fraser Valley , Chilliwack, BC , Canada

2. Faculty of Kinesiology, University of Calgary , Calgary, AB , Canada

3. Lady Davis Institute for Medical Research, Jewish General Hospital , Montreal, QC , Canada

4. National Scleroderma Foundation, Michigan Chapter , Southfield, MI , USA

5. Clinical Psychology, Radboud University , Nijmegen , The Netherlands

6. Department of Medical Psychology, Radboud Institute for Health Sciences, Radboud University Medical Center , Nijmegen , The Netherlands

7. IQ Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Center , Nijmegen , The Netherlands

8. Department of Psychiatry, Radboudumc Center for Mindfulness, Radboud Institute for Health Sciences, Radboud University Medical Center , Nijmegen , The Netherlands

9. Department of Epidemiology, Biostatistics, and Occupational Health, McGill University , Montreal, QC , Canada

10. Centre for Prognosis Research, School of Primary, Community and Social Care, Keele University , Staffordshire , UK

11. Department of Psychology, Université du Québec à Montréal , Montreal, QC , Canada

12. Department of Psychology, McGill University , Montreal, QC , Canada

13. Department of Psychiatry, McGill University , Montreal, QC , Canada

14. Department of Applied Human Sciences, Concordia University , Montreal, QC , Canada

15. Department of Community Health Sciences, University of Calgary , Calgary, AB , Canada

16. Hotchkiss Brain Institute and O’Brien Institute for Public Health, University of Calgary , Calgary, AB , Canada

17. Department of Medicine, McGill University , Montreal, QC , Canada

18. Research Institute, McGill University Health Centre , Montreal, QC , Canada

19. University of Michigan , Ann Arbor, MI , USA

20. Service de Médecine Interne, Centre de Référence Maladies Auto-immunes et Systémiques Rares d’Ile de France, Hôpital Cochin, Assistance Publique, Hôpitaux de Paris (APHP) , Paris , France

21. APHP-CUP, Hôpital Cochin, Université de Paris , Paris , France

22. Department of Biostatistics and Health Informatics, King’s College London , London , UK

23. Biomedical Ethics Unit, McGill University , Montreal, QC , Canada

24. Department of Oncology, Cumming School of Medicine, University of Calgary , Calgary, AB , Canada

25. Department of Psychosocial Resources, Tom Baker Cancer Centre, Cancer Care, Alberta Health Services , Calgary, AB , Canada

Abstract

Abstract The SPIN-CHAT Program was designed to support mental health among individuals with systemic sclerosis (SSc; commonly known as scleroderma) and at least mild anxiety symptoms at the onset of COVID-19. The program was formally evaluated in the SPIN-CHAT Trial. Little is known about program and trial acceptability, and factors impacting implementation from the perspectives of research team members and trial participants. Thus, the propose of this follow-up study was to explore research team members’ and trial participants’ experiences with the program and trial to identify factors impacting acceptability and successful implementation. Data were collected cross-sectionally through one-on-one, videoconference-based, semi-structured interviews with 22 research team members and 30 purposefully recruited trial participants (Mage = 54.9, SD = 13.0 years). A social constructivist paradigm was adopted, and data were analyzed thematically. Data were organized into seven themes: (i) getting started: the importance of prolonged engagement and exceeding expectations; (ii) designing the program and trial: including multiple features; (iii) training: research team members are critical to positive program and trial experiences; (iv) offering the program and trial: it needs to be flexible and patient-oriented; (v) maximizing engagement: navigating and managing group dynamics; (vi) delivering a videoconference-based supportive care intervention: necessary, appreciated, and associated with some barriers; and (vii) refining the program and trial: considering modification when offered beyond the period of COVID-19 restrictions. Trial participants were satisfied with and found the SPIN-CHAT Program and Trial to be acceptable. Results offer implementation data that can guide the design, development, and refinement of other supportive care programs seeking to promote psychological health during and beyond COVID-19.

Funder

Canadian Institutes of Health Research

Alberta Innovates

Fonds de recherche du Québec – Santé

Publisher

Oxford University Press (OUP)

Subject

Behavioral Neuroscience,Applied Psychology

Link

https://academic.oup.com/tbm/article-pdf/13/7/442/50779657/ibac091.pdf

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