More positive patient-reported outcomes in patients newly diagnosed with atrial fibrillation: a comparative longitudinal study

Author:

Holmlund Lena1ORCID,Hörnsten Carl2ORCID,Hörnsten Åsa1ORCID,Olsson Karin3ORCID,Valham Fredrik3ORCID,Hellström Ängerud Karin1ORCID

Affiliation:

1. Department of Nursing, Umeå University , Linnaeus väg 9, 907 36 Umeå , Sweden

2. Department of Clinical Sciences, Psychiatry, Umeå University , Umeå , Sweden

3. Department of Public Health and Clinical Medicine, Umeå University , Umeå , Sweden

Abstract

Abstract Aims To compare patient-reported outcomes (PROs) in patients newly (<6 months) diagnosed with atrial fibrillation (AF) with those who have had a longer diagnosis (≥6 months) and to investigate whether or not these outcomes change over a 6-month period. Methods and results In this longitudinal survey study, 129 patients with AF completed the Revised Illness Perception Questionnaire, the Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia, and the Hospital Anxiety and Depression Scale at baseline and after 6 months. At baseline, patients newly diagnosed with AF (n = 53), compared with patients with a previous diagnosis (n = 76), reported AF as more temporary (P = 0.003) and had a higher belief in personal and treatment control (P = 0.004 and P = 0.041, respectively). At a 6-month follow-up, patients newly diagnosed reported a lower symptom burden (P = 0.004), better health-related quality of life (HRQoL); (P = 0.015), and a higher personal control (P < 0.001) than patients previously diagnosed. Over time, in patients newly diagnosed, symptom burden and the anxiety symptom score decreased (P = 0.001 and P = 0.014, respectively) and HRQoL improved (P = 0.002). Conclusion Patients newly diagnosed with AF reported more positive PROs both at baseline and at a 6-month follow-up than patients with a previous diagnosis of AF. Therefore, it is important to quickly capture patients newly diagnosed to support their belief in their own abilities. Such support may, alongside medical treatments, help patients manage the disease, which may lead to reduced symptom burden and better HRQoL over time.

Funder

Faculty of Medicine

Umeå University

Region Västerbotten

Heart Foundation of Northern Sweden

JC Kempe’s Foundation

Strategic Research Program in Health Care Sciences

Swedish Heart and Lung Association

Publisher

Oxford University Press (OUP)

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