The Short- and Long-Term Outcome Priorities of a Western Australian Adult Burn Population

Author:

Spronk Inge123ORCID,Wood Fiona M456ORCID,Fear Mark W56ORCID,Lansdorp Corine A7,Edgar Dale W45689

Affiliation:

1. Department of Public Health, Erasmus MC University Medical Centre Rotterdam , Rotterdam, 3000CA , The Netherlands

2. Association of Dutch Burn Centres, Maasstad Hospital , Rotterdam, 3007AC , The Netherlands

3. Dutch Burns Foundation , Beverwijk, 1941AJ , The Netherlands

4. State Adult Burn Unit, Fiona Stanley Hospital, South Metropolitan Health Service , Murdoch, WA 6150 , Australia

5. Burn Injury Research Unit, School of Biomedical Sciences, University of Western Australia , Crawley, WA 6009 , Australia

6. Fiona Wood Foundation , Murdoch, WA 6150 , Australia

7. Department Plastic, Reconstructive and Hand Surgery, Amsterdam UMC location Vrije Universiteit Amsterdam , Amsterdam, 1007MB , The Netherlands

8. Institute for Health Research, Burn Injury Research Node, The University of Notre Dame Australia , Fremantle, WA 6959 , Australia

9. Safety and Quality Unit, Armadale Kalamunda Group Health Service, East Metropolitan Health Service , Mt Nasura, WA 6992 , Australia

Abstract

Abstract To optimize patient recovery, understanding which outcomes are most important to burn patients is key. However, research to determine what outcomes are patient priorities is limited. Therefore, we assessed what outcomes are most important to Western Australian burn patients, separately in the short-term (<6 months) and long-term (6-24 months) after injury. Adult patients who had a burn injury 3-36 months ago completed a survey, rating the importance of 36 short- and long-term outcomes. The survey items were ranked according to the number of patients reporting the outcome as “very important.” Results were compared between subgroups based on age, gender, burn size, and number of surgeries. Ninety-three patients were included. In the short-term, “not having a wound infection” (87.1%), “good wound healing” (83.9%), and “walking or moving around” (74.7%) were the most important outcomes. “Lifting or moving something” (67.6%), “walking or moving around” (66.2%), and “being independent” (66.2%) were reported as most important in the long-term. Scar-related outcomes were more important to females and to patients with multiple surgeries; mental health outcomes were priorities for females and patients with major burns; walking and moving around to males and older patients; and social and financial outcomes were rated highly by patients with major burns and multiple surgeries. In conclusion, the most important outcomes were consistent across time periods, indicating the importance of core outcomes in longitudinal follow-up. The wide range of priority outcomes and differences between subgroups underlines the need for multidisciplinary care and a patient-centered approach to support patients.

Funder

Dutch Burns Foundation

Publisher

Oxford University Press (OUP)

Subject

Rehabilitation,Emergency Medicine,Surgery

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