Reimagining the research-practice relationship: policy recommendations for informatics-enabled evidence-generation across the US health system

Author:

Embi Peter J1,Richesson Rachel2,Tenenbaum Jessica3,Kannry Joseph4,Friedman Charles5,Sarkar Indra Neil6,Smith Jeff7,

Affiliation:

1. Regenstrief Institute, 1101 West 10th Street, Indianapolis, Indiana 46202, USA

2. Duke University School of Nursing, 307 Trent Drive, Durham, North Carolina 27710, USA

3. Duke University School of Medicine, 2424 Erwin Road, Durham, North Carolina 27705, USA

4. Icahn School of Medicine at Mount Sinai, Box 187, New York, New York 10029, USA

5. Department of Learning Health Sciences, University Michigan Medical School, 1111 E. Catherine, St. Ann Arbor, Michigan 48109-2054, USA

6. Center for Biomedical Informatics, Brown University, Box G-R, Providence, Rhode Island 02912, USA

7. American Medical Informatics Association, 4720 Montgomery Ln., Suite 500, Bethesda, Maryland 20814, USA

Abstract

Abstract The widespread adoption and use of electronic health records and their use to enable learning health systems (LHS) holds great promise to accelerate both evidence-generating medicine (EGM) and evidence-based medicine (EBM), thereby enabling a LHS. In 2016, AMIA convened its 10th annual Policy Invitational to discuss issues key to facilitating the EGM-EBM paradigm at points-of-care (nodes), across organizations (networks), and to ensure viability of this model at scale (sustainability). In this article, we synthesize discussions from the conference and supplements those deliberations with relevant context to inform ongoing policy development. Specifically, we explore and suggest public policies needed to facilitate EGM-EBM activities on a national scale, particularly those policies that can enable and improve clinical and health services research at the point-of-care, accelerate biomedical discovery, and facilitate translation of findings to improve the health of individuals and populations.

Funder

Agency for Healthcare Research and Quality

Publisher

Oxford University Press (OUP)

Subject

Health Informatics

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