Development and pilot testing of a training for bilingual community education professionals about hereditary breast and ovarian cancer among Latinas: ÁRBOLES Familiares

Author:

Vadaparampil Susan T12,Moreno Botero Laura1,Fuzzell Lindsay1ORCID,Garcia Jennifer1,Jandorf Lina3,Hurtado-de-Mendoza Alejandra4,Campos-Galvan Claudia5,Peshkin Beth N4,Schwartz Marc D4,Lopez Katherine4,Ricker Charité6,Fiallos Katie7,Quinn Gwendolyn P8,Graves Kristi D4

Affiliation:

1. Moffitt Cancer Center, Tampa, FL, USA

2. Office of Community Outreach, Engagement, and Equity, Moffitt Cancer Center, Tampa, FL, USA

3. Icahn School of Medicine, Department of Population Health Science and Policy, New York, NY, USA

4. Cancer Prevention and Control Program, Lombardi Comprehensive Cancer Center, Georgetown University, Washington, DC, USA

5. Nueva Vida, Inc, Washington, DC, USA

6. University of Southern California, Keck School of Medicine, Los Angeles, CA, USA

7. Johns Hopkins University Kimmel Cancer Center, Baltimore, MD, USA

8. New York University, Grossman School of Medicine, New York, NY, USA

Abstract

Lay Summary Latinas at high risk for hereditary breast and ovarian cancer (HBOC) have low rates of genetic counseling and testing. Latinas may not have ready access to services like genetic counseling and testing, which need special solutions. One solution can involve training community health workers to bridge the gap between Latinas and genetic specialists. We developed an online and in person training program (ÁRBOLES Familiares or Family Trees) for English-Spanish bilingual community health workers that teaches them how to help Latinas get access to genetic services. We tested this program with a small group of community health workers. After the program, their HBOC knowledge, genetic literacy, and confidence to help Latinas get access to genetic services had improved. Trainees also made suggestions to improve the program, which will be used to help future trainees expand their knowledge and skills to work with Latinas at risk of HBOC.

Funder

National Cancer Institute

Moffitt Cancer Center

Publisher

Oxford University Press (OUP)

Subject

Behavioral Neuroscience,Applied Psychology

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