Advocacy in Neurology

Author:

Grisold Wolfgang,Struhal Walter,Grisold Thomas

Abstract

The concept of advocacy literally means to speak for someone. Rooted in law, the term has been increasingly used in medical and patient-related contexts in the past years. This book focuses on advocacy activities in the field of neurology. Neurology deals with heterogeneous and diverse populations of patients, who suffer from disability, chronic, and often progressive diseases. The complex characteristics of neurological diseases yield exceptional challenges to plan for and implement advocacy activities on all levels. All stakeholders are challenged to provide the support patients need; advocacy facilitates this process and bundles efforts to reach the objective of the advocacy task. Building on the premise that advocacy goes beyond merely theoretical claims, this book collects and organizes advocacy approaches in practice. Thereby, we draw on different dimensions of ‘advocacy in neurological practice’ and discuss implications for management, healthcare, planning, and policymaking. We place special emphasis on what advocacy means for several different diseases, such as amyotrophic lateral sclerosis (ALS), brain tumours, MS, epilepsy among others. Contributions include best practices, lessons learnt, and tools to be used. The main goal of this book is to raise awareness for advocacy in neurology and empower readers to plan for and implement appropriate activities. In advocacy, anyone can be both an advocate and an advocatee. This book offers a seminal contribution for anyone who is pursuing or intending to pursue advocacy in neurology and related fields.

Publisher

Oxford University Press

Cited by 7 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. The WFN Service page, edition 3;Journal of the Neurological Sciences;2024-10

2. World Federation of Neurology;European Journal of Neurology;2024-06-12

3. Palliative Care in Migrants;Sustainable Development Goals Series;2021-10-23

4. Relevante Themen in der Neurologie und Psychiatrie;psychopraxis. neuropraxis;2020-09

5. World Brain Day 2020: Join Us to “Move to End Parkinson’s Disease”: A World Federation of Neurology and International Parkinson and Movement Disorders Society Collaboration;Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques;2020-07-13

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